NCI Cancer Bulletin: A Trusted Source for Cancer Research NewsNCI Cancer Bulletin: A Trusted Source for Cancer Research News
September 14, 2004 • Volume 1 / Number 35 E-Mail This Document  |  Download PDF  |  Bulletin Archive/Search  |  Subscribe

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Community UpdateCommunity Update

Consumer Group Names New Members, Shifts Focus

CCR Grand Rounds
September 21: Dr. David Paul Carbone, Director, Lung Cancer SPORE, and Director, Experimental Therapeutics Program, Vanderbilt-Ingram Cancer Center, will present "Molecular Signatures of Lung Cancer."

October 5: Dr. Judah Folkman, Andrus Professor of Pediatric Surgery and Professor of Cell Biology, Harvard Medical School, and Director, Vascular Biology Program, Children's Hospital Boston, will present "Can the Angiogenic Switch be Prevented in Human Cancer?"

CCR Grand Rounds are held 8:30 to 9:30 a.m. at the NIH campus in Bethesda, Md., in the Clinical Center's Lipsett Auditorium.

NCI Director Dr. Andrew C. von Eschenbach has reappointed 3 members and intends to appoint 12 new members to the NCI Director's Consumer Liaison Group (DCLG) for 2-, 3-, and 4-year terms. DCLG is a key group that brings together the cancer advocacy community and NCI. The group is shifting its focus to enhance communication between NCI and patient-oriented constituent groups.

Begun in 1997, DCLG - a federally chartered committee - was the first all-consumer advisory board at NIH. DCLG's 15 members advise and recommend a wide variety of issues, programs, and research priorities to the NCI director from the perspective of people whose lives are affected by cancer.

To further its goal of broadening communication, DCLG recently decided to focus on enhancing creative, effective dialogue with the cancer advocacy community. It also will increase its efforts in health disparity and cancer survivorship.

New DCLG Chairman Douglas Ulman, director of survivorship at the Lance Armstrong Foundation and returning DCLG member, says, "We want to bridge the gap between the cancer advocacy community and NCI…so people understand how they can go about speaking with the institute and effecting change."

DCLG members represent a broad spectrum of disease sites. Diseases currently represented include leukemia and lymphoma; and kidney, ovarian, breast, and prostate cancers. Representatives from survivor and community groups and underserved populations also serve as members.

"DCLG has historically been a wonderful group of passionate people and this new group is the most diverse group of cancer advocates that we have ever had, representing all facets of people with cancer," Mr. Ulman adds.

Dr. von Eschenbach said that he expects incoming DCLG members to build on the solid work of prior DCLGs and open even more avenues of contact between NCI and the cancer community. By promoting a productive exchange of information between the institute and its constituents, DCLG efforts will also enhance other NCI initiatives as the institute continues to reach out to the public and make progress in the fight against cancer, he noted.

The new DCLG's first meeting is taking place September 13-15 in Bethesda, Md. In addition to Mr. Ulman, the incoming members, some of whose appointments are pending confirmation, are:

  • Margaret L. Anthony, South Carolina Chapter, Yul Brynner Head and Neck Foundation/Hollings Cancer Center/Medical University of South Carolina
  • Vernal H. Branch, Virginia Breast Cancer Foundation/National Breast Cancer Coalition
  • William P. Bro,* Kidney Cancer Association
  • Lourie Campos,* Community Health Partnership
  • Nancy Davenport-Ennis,* Patient Advocate Foundation
  • Bobbie de Córdova-Hanks, Bosom Buddies/Women's Center of Jacksonville, Fla.
  • Dr. Beverly Laird, American Cancer Society/Susan G. Komen Breast Cancer Foundation
  • Dr. Sylvia M. Ramos,* People Living Through Cancer/Intercultural Cancer Council
  • Eric Rosenthal, medical journalist/EvocaTalk® Reports
  • Mary Jackson Scroggins,* Ovarian Cancer National Alliance
  • Sue Sumpter,* Leukemia and Lymphoma Society/Candlelighters Childhood Cancer Foundation
  • Dr. Marisa C. Weiss,
  • Celeste Whitewolf, Native People's Circle of Hope
  • Col. (Ret.) James E. Williams, Jr., U.S. Army, Pennsylvania Prostate Cancer Coalition


For more information on DCLG, go to