Consumer Group Names New Members, Shifts Focus
Begun in 1997, DCLG - a federally chartered committee - was the first all-consumer advisory board at NIH. DCLG's 15 members advise and recommend a wide variety of issues, programs, and research priorities to the NCI director from the perspective of people whose lives are affected by cancer.
To further its goal of broadening communication, DCLG recently decided to focus on enhancing creative, effective dialogue with the cancer advocacy community. It also will increase its efforts in health disparity and cancer survivorship.
New DCLG Chairman Douglas Ulman, director of survivorship at the Lance Armstrong Foundation and returning DCLG member, says, "We want to bridge the gap between the cancer advocacy community and NCI…so people understand how they can go about speaking with the institute and effecting change."
DCLG members represent a broad spectrum of disease sites. Diseases currently represented include leukemia and lymphoma; and kidney, ovarian, breast, and prostate cancers. Representatives from survivor and community groups and underserved populations also serve as members.
"DCLG has historically been a wonderful group of passionate people and this new group is the most diverse group of cancer advocates that we have ever had, representing all facets of people with cancer," Mr. Ulman adds.
Dr. von Eschenbach said that he expects incoming DCLG members to build on the solid work of prior DCLGs and open even more avenues of contact between NCI and the cancer community. By promoting a productive exchange of information between the institute and its constituents, DCLG efforts will also enhance other NCI initiatives as the institute continues to reach out to the public and make progress in the fight against cancer, he noted.
The new DCLG's first meeting is taking place September 13-15 in Bethesda, Md. In addition to Mr. Ulman, the incoming members, some of whose appointments are pending confirmation, are:
* APPOINTMENT PENDING
For more information on DCLG, go to http://deainfo.nci.nih.gov/ADVISORY/dclg/dclg.htm.