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Adolescents and Young Adults with Cancer

Organizations and Resources

Organizations
There are a growing number of organizations that support adolescents and young adults who have cancer. Some organizations help young people cope or connect with peers who are going through the same things. Others address topics such as fertility and survivorship. There are also radio and call-in programs that bring together young people and medical experts to share information and advice. Many of these organizations are listed below. You can also search NCI’s National Organizations Database to find emotional, practical, and financial support services.

On this page:
Young Adults
Teens and Adolescents
Coping and Support
Fertility
Financial and Legal Resources
Survivorship
NCI's National Organizations Database
Videos and Live Call-in Programs

Young Adults

  • American Society of Clinical Oncology (ASCO): Cancer in Young Adults
    ASCO’s Cancer in Young Adults website covers cancer types, treatments, and clinical trials as well as relationships, body image, school, work, and retreats.
  • Critical Mass: The Young Adult Cancer Alliance
    An independent non-profit organization whose goals are to serve as the unified voice for the AYA cancer movement, foster collaborations among AYA organizations, establish AYA cancer programs, and provide access to comprehensive data on AYA cancers.
  • Planet Cancer
    Planet Cancer is an online community of young adults with cancer that connects and empowers young adults and helps with access to support, resources, and "cancertainment."
  • SeventyK
    SeventyK provides education about age-appropriate treatment and the unique needs of adolescent and young adult cancer patients. Services include a Wellness Network for these patients, caregivers, and healthcare professionals.
  • Stupid Cancer
    A global online/offline community that empowers young adults affected by cancer through programs and services such as The Stupid Cancer Radio Show and the OMG! Cancer Summit for Young Adults.
  • Ulman Cancer Fund for Young Adults
    Ulman Cancer Fund for Young Adults has resources such as My Way: Writings of Young Adult Cancer Survivors and No Way It Can’t Be: Guidebook for Young Adults Facing Cancer and links to support and navigation resources for young adults.
  • Vital Options
    Vital Options, founded in 1983 as the first organization for young adults with cancer, provides video and radio content for everyone touched by cancer. It launched National Young Adult Cancer Awareness Week® in 2003 as a collaborative effort to unify the voices and work on behalf of young adults with cancer.

Teens and Adolescents

  • CureSearch: For Patients
    CureSearch helps you learn about cancer, its treatment and deal with what is happening, on their site, in their discussion board, and through patient stories. Their Adolescent and Young Adult (15-29 year olds) Research Committee focuses on childhood cancers that affect young adults. CureSearch unites the Children’s Oncology Group (COG) and the National Childhood Cancer Foundation.
  • Starlight Children's Foundation
    Starlight Children’s Foundation has online educational programs and games, videos, and comic books that explain medical procedures, conditions, and treatments. Its online community and interactive pages help teens connect with other teens.
  • Teens Living with Cancer
    Teens Living with Cancer has information to help teens learn about cancer, its treatment, and how to cope. This site’s “Dealing with It” section talks about body issues, school, family, and friends, and it helps teens connect with other teens who have cancer.

Coping and Support

  • CancerCare
    CancerCare provides counseling and support groups, education, financial assistance, and practical help from professional oncology social workers. Online resources and publications help patients, caregivers, and survivors learn more about cancer types, clinical trials, doctor/patient communication, and financial/insurance information.
  • Cancer and Careers
    Cancer and Careers has information and resources for women who work during and after cancer treatment through its website, publications, support groups, educational seminars, and workbook.
  • Cancer Support Community
    Cancer Support Community offers a network of personalized services and education for people affected by cancer, online and through professionally led online discussion and support groups, workshops, and educational series such as Frankly Speaking About Cancer for newly diagnosed patients. They also offer Group Loop, an online support group with information for teens with cancer and their parents.
  • Imerman Angels
    Imerman Angels carefully matches and pairs a person who has cancer with someone who has survived the same type of cancer (a mentor angel). The service is free and open to patients, family members, and friends. This organization was started by a young adult cancer survivor.
  • MyLifeLine.org
    MyLifeLine.org enables cancer patients and caregivers to create free, customized websites. Their mission is to empower patients to build an online support community of family and friends to foster connection, inspiration, and healing.

Fertility

  • Fertile Hope
    Fertile Hope helps cancer patients learn and talk with their doctor about fertility risks, parenthood options, and pregnancy after cancer. The site also offers fertility-related stories from young adult survivors and links to published research and current studies.
  • MyOncofertility.org
    MyOncofertility.org is an interactive patient education resource where people can find answers to cancer-related fertility questions, guidance for talking to physicians, and help finding a local fertility preservation specialist.

Financial and Legal Resources

  • Young Adults and the Affordable Care Act
    Learn the top things for young adults to know about the Affordable Care Act.
  • The SAMFund for Young Adult Survivors of Cancer
    The SAMFund supports young adult cancer survivors in the United States as they recover from the financial impact of cancer treatment. Through direct financial assistance and free online support and education, The SAMFund helps young adults move forward with their personal, professional, and academic goals.
  • Cancer Legal Resource Center
    The CLRC provides free information and resources on cancer-related legal issues. Through a national Telephone Assistance Line (866-THE-CLRC), the Center answers questions about federal and state rights and options related to health insurance coverage, getting or keeping a job, disability insurance, managing the financial impact of cancer care, education, fertility, and how health care reform impacts young adults.

Survivorship

  • National Coalition for Cancer Survivorship (NCCS)
    NCCS has a wealth of resources for people living with, through, and beyond cancer, including Cancer Survival Toolbox and Cancer, Keys to Survivorship, and a comprehensive resource guide.
  • Young Survival Coalition (YSC)
    YSC reaches young women with breast cancer through its online bulletin board, resource kit, DVDs, booklets, fact sheets, support groups, and a guidebook of national breast cancer-related resources.

NCI's National Organizations Database

Videos and Live Call-in Programs

  • Vital Options: The Group Room
    Videos and radio programs feature interviews with leading oncologists, researchers, advocates and survivors, discussing clinical advances and issues that affect cancer patients and their loved ones. Hosted by a young adult cancer survivor, now a multiple time survivor.
  • The Stupid Cancer Show
    Hosted by two young adult cancer survivors, these shows air live and have an integrated chat room.
  • CancerCare: Connect® Education Workshops
    Hosted by oncology experts, these call-in workshops help patients and families understand and cope with cancer.