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Questions About Cancer? 1-800-4-CANCER

Coping with Advanced Cancer

  • Posted: 01/05/2012

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Resources

Federal Resources
Nonprofit Organizations

Federal Resources

National Cancer Institute (NCI)
Provides current information on cancer prevention, screening, diagnosis, treatment, genetics, and supportive care. Lists clinical trials and specific cancer topics in NCI's Physician Data Query (PDQ®) database.
Visit:www.cancer.gov

    NCI's Cancer Information Service
Answers questions about cancer, clinical trials, and cancer-related services and helps users find information on the NCI Web site. Provides NCI printed materials.
Toll-free:1-800-4-CANCER (1-800-422-6237)
Visit:www.cancer.gov/cis
Chat online:Click on LiveHelp

Administration on Aging
Provides information, assistance, individual counseling, organization of support groups, caregiver training, respite care, and supplemental services.
Phone:1-202-619-0724
TTY:1-800-877-8339
Visit:www.aoa.gov

Centers for Medicare and Medicaid Services
Provides information for consumers about patient rights, prescription drugs, and health insurance issues, including Medicare and Medicaid.
Toll-free:1-800-MEDICARE (1-800-633-4227)
Visit:www.medicare.gov (for Medicare information)
or www.cms.hhs.gov (other information)

Equal Employment Opportunity Commission
Provides fact sheets about job discrimination, protections under the Americans With Disabilities Act, and employer responsibilities. Coordinates investigations of employment discrimination.
Toll-free:1-800-669-4000
TTY:1-800-669-6820
Visit:www.eeoc.gov

U.S. Department of Labor, Office of Disability Employment Policy
Provides fact sheets on a variety of disability issues, including discrimination, workplace accommodation, and legal rights.
Toll-free:1-866-633-7365
TTY:1-877-889-5627
Visit:www.dol.gov/odep

Nonprofit Organizations

Aging With Dignity
Provides information and materials regarding advance directives. You can order the document Five Wishes, which states your end of life decisions for your health care team, and friends and family members.
Toll-free:1-888-5WISHES (1-888-594-7437)
Visit:www.agingwithdignity.org

American Cancer Society, National Cancer Information Center
Available to answer questions 24 hours a day, 7 days a week.
Toll-free:1-800-ACS-2345 (1-800-227-2345)
Visit:www.cancer.org

CancerCare
Offers free support, information, financial assistance, and practical help to people with cancer and their loved ones.
Toll-free:1-800-813-HOPE (1-800-813-4673)
Visit:www.cancercare.org

Cancer Support Community
Cancer Support Community is a national organization that provides support groups, stress reduction and cancer education workshops, nutrition guidance, exercise sessions, and social events.
Toll-free:1-888-793-WELL (1-888-793-9355)
Visit:www.cancersupportcommunity.org

Hospice Foundation of America
Provides programs and materials on hospice care, caregiving, grief, and end of life. They also provide a hospice locator service, and links to other organizations and resources.
Toll-free:1-800-854-3402
Visit:www.hospicefoundation.org

Kids Konnected
Offers education and support for children who have a parent with cancer or who have lost a parent to cancer.
Toll-free:1-800-899-2866
Visit:www.kidskonnected.org

National Coalition for Cancer Survivorship
Provides information on cancer support, employment, financial and legal issues, advocacy, and related issues.
Toll-free:1-877-NCCS YES (1-877-622-7937)
Visit:www.canceradvocacy.org

National Hospice and Palliative Care Organization
Provides information on hospice care, local hospice programs, state specific advance directives, and locating a local health care provider. They also provide education and materials on palliative and end of life issues, as well as links to other organizations and resources.
Toll-free:1-800-658-8898
Visit:www.nhpco.org
Caring Connections
Toll-free:1-800-658-8898
Visit:www.caringinfo.org

NeedyMeds--Indigent Patient Programs
Lists medicine assistance programs available from drug companies. NOTE: Usually patients cannot apply directly to these programs. Ask your doctor, nurse, or social worker to contact them.
Visit:www.needymeds.com

Patient Advocate Foundation
Offers education, legal counseling, and referrals concerning managed care, insurance, financial issues, job discrimination, and debt crisis matters.
Toll-free:1-800-532-5274
Visit:www.patientadvocate.org

* For a complete list of resources, see the database, "National Organizations That Offer Support Services" at www.cancer.gov, search terms "national organizations." Or call 1-800-4-CANCER (1-800-422-6237) to ask for help.