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Questions About Cancer? 1-800-4-CANCER

When Someone You Love Has Advanced Cancer: Support for Caregivers

  • Posted: 01/10/2012

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Resources

Federal Resources
Nonprofit Organizations

Federal Resources

National Cancer Institute (NCI)

Provides current information on cancer prevention, screening, diagnosis, treatment, genetics, and supportive care. Lists clinical trials and specific cancer topics in NCI's Physician Data Query (PDQ®) database.

Web Site:    www.cancer.gov

NCI's Cancer Information Service

Answers questions about cancer, clinical trials, and cancer-related services and helps users find information on the NCI Web site. Provides NCI printed materials.

Phone:   1-800-4-CANCER (1-800-422-6237)
Web Site:    www.cancer.gov/cis
Chat online:    Click on LiveHelp

Administration on Aging

Provides information, assistance, individual counseling, organization of support groups, caregiver training, respite care, and supplemental services.

Phone:   1-202-619-0724
TTY:   1-800-877-8339 (Federal Relay Serivce) or 1-202-585-1840
Web Site:   www.aoa.gov

Centers for Medicare and Medicaid Services

Provides information for consumers about patient rights, prescription drugs, and health insurance issues, including Medicare and Medicaid.

Phone:   1-800-MEDICARE (1-800-633-4227)
Web Site:   www.medicare.gov (for Medicare information)
or www.cms.hhs.gov (other information)

Equal Employment Opportunity Commission

Provides fact sheets about job discrimination, protections under the Americans With Disabilities Act, and employer responsibilities. Coordinates investigations of employment discrimination.

Phone:   1-800-669-4000
TTY:   1-800-669-6820
Web Site:   www.eeoc.gov

National Association of Area Agencies on Aging, Eldercare Locator

The Eldercare Locator is a nationwide directory assistance service designed to help older persons and caregivers find local resources for support. Areas of support include transportation, meals, home care, housing alternatives, legal issues, and social activities.

Phone:   1-800-677-1116
Web Site:   www.eldercare.gov

U.S. Department of Labor, Office of Disability Employment Policy

Provides fact sheets on a variety of disability issues, including discrimination, workplace accommodation, and legal rights.

Phone:   1-866-633-7365
TTY:   1-877-889-5627
Web Site:   www.dol.gov/odep

Nonprofit Organizations

Aging With Dignity

Provides information and materials regarding advance directives. You can order the document Five Wishes, which states your end of life decisions for your health care team, and friends and family members.

Toll-Free:1-888-5WISHES (1-888-594-7437) Web Site:   www.agingwithdignity.org

American Cancer Society, National Cancer Information Center

Provides a variety of cancer information and support to patients, families, and caregivers. Available to answer questions 24 hours a day, 7 days a week.

Phone:   1-800-ACS-2345 (1-800-227-2345)
Web Site:   www.cancer.org

CancerCare

Offers free support, information, financial assistance, and practical help to people with cancer and their loved ones free of charge.

Phone:   1-800-813-HOPE (1-800-813-4673)
Web Site:   www.cancercare.org

Cancer Support Community

Cancer Support Community is a national organization that provides support groups, stress reduction and cancer education workshops, nutrition guidance, exercise sessions, and social events.

Phone:   1-888-793-WELL (1-888-793-9355)
Web Site:   www.cancersupportcommunity.org

Family Caregiver Alliance

Family Caregiver Alliance addresses the needs of families and friends who provide long-term care at home.

Phone:   1-800-445-8106
Web Site:   www.caregiver.org

Hospice Foundation of America

Provides programs and materials on hospice care, caregiving, grief, and end of life. They also provide a hospice locator service, and links to other organizations and resources.

Phone:   1-800-854-3402
Web Site:   www.hospicefoundation.org

Livestrong

Livestrong seeks to inspire and empower people living with, through, and beyond cancer to live strong. It provides education, advocacy, public health and research programs.

Phone:   1-512-236-8820 (general number)
1-866-235-7205 (LIVESTRONG SurvivorCare Program)
Web Site:   www.livestrong.org

NeedyMeds

The NeedyMeds Web site lists medicine assistance programs available from drug companies.
NOTE: Usually, patients cannot apply directly to these programs. Ask a doctor, nurse, or social worker to contact them on behalf of your loved one.

Web Site:   www.needymeds.com

National Coalition for Cancer Survivorship

Provides information on cancer support, employment, financial and legal issues, advocacy, and related issues.

Phone:   1-877-NCCS YES (1-877-622-7937)
Web Site:   www.canceradvocacy.org

National Family Caregivers Association (NFCA)

NFCA provides information, education, support, public awareness, and advocacy for caregivers.

Phone:   1-800-896-3650
Web Site:   www.nfcacares.org

National Hospice and Palliative Care Organization

Provides information on hospice care, local hospice programs, state specific advance directives, and locating a local health care provider. They also provide education and materials on palliative and end of life issues, as well as links to other organizations and resources.

Phone:   1-800-658-8898
Web Site:   www.nhpco.org

Patient Advocate Foundation

Offers education, legal counseling, and referrals concerning managed care, insurance, financial issues, job discrimination, and debt crisis matters.

Phone:   1-800-532-5274
Web Site:   www.patientadvocate.org

The Well Spouse Foundation

The foundation provides support to wives, husbands, and partners of chronically ill and/or disabled persons.

Phone:   1-800-838-0879
Web Site:   www.wellspouse.org

* For a complete list of resources, see the fact sheet, "National Organizations That Offer Cancer-Related Services" at www.cancer.gov, search terms "national organizations." Or call 1-800-4-CANCER (1-800-422-6237) to ask for it.