National Cancer Institute (NCI)
Provides current information on cancer prevention, screening, diagnosis, treatment, genetics, and supportive care. Lists clinical trials and specific cancer topics in NCI's Physician Data Query (PDQ®) database.
Web Site: www.cancer.gov
NCI's Cancer Information Service
Answers questions about cancer, clinical trials, and cancer-related services and helps users find information on the NCI Web site. Provides NCI printed materials.
Administration on Aging
Provides information, assistance, individual counseling, organization of support groups, caregiver training, respite care, and supplemental services.
TTY: 1-800-877-8339 (Federal Relay Serivce) or 1-202-585-1840
Web Site: www.aoa.gov
Centers for Medicare and Medicaid Services
Provides information for consumers about patient rights, prescription drugs, and health insurance issues, including Medicare and Medicaid.
Equal Employment Opportunity Commission
Provides fact sheets about job discrimination, protections under the Americans With Disabilities Act, and employer responsibilities. Coordinates investigations of employment discrimination.
Web Site: www.eeoc.gov
National Association of Area Agencies on Aging, Eldercare Locator
The Eldercare Locator is a nationwide directory assistance service designed to help older persons and caregivers find local resources for support. Areas of support include transportation, meals, home care, housing alternatives, legal issues, and social activities.
Web Site: www.eldercare.gov
U.S. Department of Labor, Office of Disability Employment Policy
Provides fact sheets on a variety of disability issues, including discrimination, workplace accommodation, and legal rights.
Web Site: www.dol.gov/odep
Aging With Dignity
Provides information and materials regarding advance directives. You can order the document Five Wishes, which states your end of life decisions for your health care team, and friends and family members.
Toll-Free:1-888-5WISHES (1-888-594-7437) Web Site: www.agingwithdignity.org
American Cancer Society, National Cancer Information Center
Provides a variety of cancer information and support to patients, families, and caregivers. Available to answer questions 24 hours a day, 7 days a week.
Phone: 1-800-ACS-2345 (1-800-227-2345)
Web Site: www.cancer.org
Offers free support, information, financial assistance, and practical help to people with cancer and their loved ones free of charge.
Phone: 1-800-813-HOPE (1-800-813-4673)
Web Site: www.cancercare.org
Cancer Support Community
Cancer Support Community is a national organization that provides support groups, stress reduction and cancer education workshops, nutrition guidance, exercise sessions, and social events.
Phone: 1-888-793-WELL (1-888-793-9355)
Web Site: www.cancersupportcommunity.org
Family Caregiver Alliance
Family Caregiver Alliance addresses the needs of families and friends who provide long-term care at home.
Web Site: www.caregiver.org
Hospice Foundation of America
Provides programs and materials on hospice care, caregiving, grief, and end of life. They also provide a hospice locator service, and links to other organizations and resources.
Web Site: www.hospicefoundation.org
Livestrong seeks to inspire and empower people living with, through, and beyond cancer to live strong. It provides education, advocacy, public health and research programs.
Phone: 1-512-236-8820 (general number)
1-866-235-7205 (LIVESTRONG SurvivorCare Program)
Web Site: www.livestrong.org
The NeedyMeds Web site lists medicine assistance programs available from drug companies.
NOTE: Usually, patients cannot apply directly to these programs. Ask a doctor, nurse, or social worker to contact them on behalf of your loved one.
Web Site: www.needymeds.com
National Coalition for Cancer Survivorship
Provides information on cancer support, employment, financial and legal issues, advocacy, and related issues.
Phone: 1-877-NCCS YES (1-877-622-7937)
Web Site: www.canceradvocacy.org
National Family Caregivers Association (NFCA)
NFCA provides information, education, support, public awareness, and advocacy for caregivers.
Web Site: www.nfcacares.org
National Hospice and Palliative Care Organization
Provides information on hospice care, local hospice programs, state specific advance directives, and locating a local health care provider. They also provide education and materials on palliative and end of life issues, as well as links to other organizations and resources.
Web Site: www.nhpco.org
Patient Advocate Foundation
Offers education, legal counseling, and referrals concerning managed care, insurance, financial issues, job discrimination, and debt crisis matters.
Web Site: www.patientadvocate.org
The Well Spouse Foundation
The foundation provides support to wives, husbands, and partners of chronically ill and/or disabled persons.
Web Site: www.wellspouse.org
* For a complete list of resources, see the fact sheet, "National Organizations That Offer Cancer-Related Services" at www.cancer.gov, search terms "national organizations." Or call 1-800-4-CANCER (1-800-422-6237) to ask for it.