Appendix
This worksheet is to help you determine how to accomplish your goals for clinical trial outreach and education. We hope that this planning will inspire you to take realistic steps towards your goals. You may want to print this appendix for future reference.
Please be realistic in planning; you do not need to fill out every page.
1. Remind yourself why you/your organization want(s) to get involved in clinical trial outreach and education. Sometimes it can be helpful to list these reasons before you plan your efforts.
List five reasons:
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2. Given your interest in the above topic areas, which of the following activities do you feel ready to undertake during the next 6 months or next year?
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| Read through the entire action plan before you begin to check your interests. Be realistic about your other commitments! |
Ways to Educate Yourself
Use NCI resources to keep up-to-date with new clinical trial information, including www.cancer.gov
Find local clinical trials in your community
Attend conferences, meetings, and workshops
Ways to Educate Others, One-on-One
Find opportunities to talk to others-neighbors, friends, and coworkers-about clinical trials, and about the common myths surrounding clinical trials, and where to find more information on clinical trials
Help others understand how to evaluate research in the news
Ways to Conduct Community Outreach and Education
Find opportunities and develop a strategy to speak about clinical trials and/or:
- Present NCI slide programs or the awareness video "Cancer Trials…Because Lives Depend on It"
Distribute educational materials such as those in this series:
- At meetings or events
- Through doctors' offices
- Through a booth for local research institution(s) at events
Write articles for newsletters; post articles on Web sites
Host an information session or community forum on clinical trials
Form a clinical trial advocacy coalition
Ways to Work with the Media
Develop a media campaign
Contact local media outlets about running a story related to clinical trials
Write a letter to the editor or an op-ed piece for your local newspaper
Ways to Work with Hospitals, Medical Centers, and Universities
Help researchers design and conduct clinical trial recruitment efforts
Find ways to get primary care doctors, oncologists, and oncology nurses to understand local clinical trial resources and to refer people to trials
Find out how you can serve on a local institutional review board (IRB)
3. What resources will you need to get these activities accomplished? (Think about time, organizations, and individuals.)
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4. Name five steps you will take to begin planning these activities. Be as specific as possible.
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5. What challenges do you see standing in your way of accomplishing these activities?
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6. How can you address these challenges? If you are working as a part of a larger organizational effort, how can you get support from your organization?
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How You Can be an Advocate for Change: Action Against Cancer. (1997). Washington, DC: Center for the Advancement of Health.
KU Work Group on Health Promotion and Community Development. (2000). Community Tool Box. Lawrence, KS: University of Kansas. [Online], Available: http://ctb.ku.edu/en/default.aspx.
Stevens, G.L. (1990). A Process for Building Coalitions. Lincoln, NE: Cooperative Extension, Institute of Agriculture and Natural Resources, University of Nebraska. [Online], Available: http://digitalcommons.unl.edu/extensionhist/549/
Susan G. Komen Breast Cancer Foundation. (1999). Educational materials for affiliate distribution. Clinical Research Affiliates Funding Trials (CRAFT).
