Do you know someone who has been diagnosed with or suspected to have one of these rare disorders - Fanconi's anemia, Diamond-Blackfan Anemia, Shwachman-Diamond Syndrome, Dyskeratosis Congenita or other rare marrow syndromes. If so, a new study at the National Cancer Institute is open for families with these conditions, since they may have a higher risk of cancer. Dr. Blanche Alter of the National Cancer Institute says:
"By evaluating patients and their families, we hope to learn more about their potential complications, including possible development of cancers such as leukemia or solid tumors. We also hope to assess cancer screening and prevention that will improve their quality of life."
People who join, and their families, will be asked to share their medical histories and will be offered thorough physical exams, blood and bone marrow studies, age-appropriate cancer screening and consultations with specialists. Study-related medical and travel expenses will be paid by NCI. To find out more, call 800-518-8474 or visit the web site at marrowfailure.cancer.gov.