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Survivorship - Living with and Beyond Cancer

Life and health after a cancer diagnosis and once treatment is over.

On this page:
Life After Cancer
Cancer Information Summaries on Specific Survivorship Topics
Statistics
Post-treatment Studies
NCI Offices

Life After Cancer
Facing Forward: Life After Cancer Treatment
This publication covers post-treatment issues such as follow-up medical care, physical and emotional changes, changes in social relationships, and workplace issues.

Facing Forward: Ways You Can Make a Difference in Cancer
Information to help cancer survivors and those who have taken care of someone with cancer become involved in giving back to their community.

Follow-up Care After Cancer Treatment
A fact sheet that provides information about follow-up medical care for patients who have completed cancer treatment.

Passport for Care: An Internet-Based Survivorship Care Plan
An article describing an interactive Internet resource developed by researchers at Baylor College of Medicine and Texas Children's Cancer Center for survivors of childhood cancer. The Web-based resource provides the user accurate, timely, and individualized healthcare information on a "just-in-time" basis.

Adult Survivors of Childhood Cancer Are Prone to Chronic Health Conditions
Childhood cancer survivors are more likely than their siblings to have developed a later, chronic health condition, according to the October 12, 2006, issue of the New England Journal of Medicine. Survivors should get close, long-term follow-up from doctors who understand what complications to look for.

Survivors of Childhood Cancer More Likely to Face Early Menopause
When girls who survive cancer grow up, they are 13 times more likely to experience menopause before age 40 than other women, according to the July 5, 2006, issue of the Journal of the National Cancer Institute.

Radiation Therapy and You: Late Radiation Therapy Side Effects
A section of the online booklet "Radiation Therapy and You."

Journey Forward: Guiding Survivors as They Move Ahead
The Journey Forward program helps survivors transition life after cancer through the use of treatment summaries and follow-up care plans that include steps for follow-up care and monitoring. Journey Forward's custom-made Survivorship Care Plan Builder is available to any oncologist, and the electronic Medical History Builder allows patients to easily record their own health history.
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Cancer Information Summaries on Specific Survivorship Topics
Late Effects of Treatment for Childhood Cancer (PDQ®)
[ patient ] [ health professional ]
Expert-reviewed information summary about the health problems that continue or appear after cancer treatment has ended.

Smoking Cessation and Continued Risk in Cancer Patients (PDQ®)
[ patient ] [ health professional ]
Expert-reviewed information summary about the influence of continued smoking on cancer treatment and risk of second cancers. Interventions to encourage smoking cessation are also discussed.

Post-traumatic Stress Disorder (PDQ®)
[ patient ] [ health professional ]
Expert-reviewed information summary about post-traumatic stress disorder in cancer patients, cancer survivors, and their family members. Assessment and treatment of this disorder are discussed.
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Statistics
Estimated U.S. Cancer Prevalence Counts: Who Are Our Cancer Survivors in the U.S.?
Information from the NCI's Division of Cancer Control and Population Sciences.

New Malignancies Among Cancer Survivors: SEER Cancer Registries, 1973-2000
This monograph describes and quantifies the risk of developing new malignancies among more than 2 million cancer survivors for the period 1973 to 2000.
Post-treatment Studies
The Childhood Cancer Survivor Study: An Overview
Health problems that develop years later as a result of a survivor's original cancer treatment are known as late effects. The Childhood Cancer Survivor Study (CCSS) was started in 1993 to better understand these late effects.

Studies Suggest Exercise Improves Colorectal Cancer Outcomes
The results of two new prospective, observational studies offer compelling evidence to suggest that regular physical activity in the months following treatment may decrease the risk of cancer recurrence and death from colorectal cancer, according to the Aug. 1, 2006, issue of the Journal of Clinical Oncology.

Allogeneic Stem-Cell Transplant Survivors Face Long-Term Challenges
People who undergo allogeneic hematopoietic stem-cell transplantation (HCT) and survive for at least two years remain at increased risk of death even 15 years after treatment, reports a study published online August 1, 2007, in Blood.
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NCI Offices
Office of Cancer Survivorship
Information about cancer survivorship research.

Office of Advocacy Relations
OAR was established to help strengthen the institute's communications and relationships with national advocacy and voluntary organizations who work with consumer advocates, and scientific and professional societies concerned about cancer.

Office of Women's Health: Cancer Survivorship
Survivorship statistics, information about NCI research on cancer survivorship, and cancer survivorship plans and reports.
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A Service of the National Cancer Institute
Department of Health and Human Services National Institutes of Health USA.gov