The National Institute of Child Health and Human Development (NICHD) is working with NCI Enterprise Vocabulary Services (EVS) and numerous contributors from national and international academic, clinical and research institutions to provide standardized terminology for coding pediatric clinical trials and other research activities.
In 2008-2010, NICHD led a Pediatric Terminology Harmonization Initiative that successfully harmonized child life stages from six primary sources and established several agreed sets of standard coding terminology. A second harmonization project integrated over 2,000 unique terms used by three neonatal research networks.
Together, these sets of prenatal and pediatric terminology currently include newborn screening, pregnancy and childbirth, childhood immunization, neurological development, and the neonatal research network terminologies. Since 2013, several new expert working groups were established to extend coverage into other areas. Terminology sets are developed, updated and published monthly through the NCI Thesaurus and EVS.
Pediatric terminology files are further described and available for download from this EVS File Transfer Protocol (FTP) site: http://evs.nci.nih.gov/ftp1/NICHD/About.html.