The Childhood Cancer Data Initiative (CCDI) Data Ecosystem is a connected network of tools and resources that brings together clinical, research, and registry data on children, adolescents, and young adults (AYAs) with cancer from separate data repositories (collections of stored data). The ecosystem also provides tools to use the data in new ways.
Users can easily access the ecosystem through the CCDI Hub, an entry point for basic scientists, doctors, data scientists, advocates, patients, and families looking to use and connect with CCDI-managed data.
How will the CCDI Data Ecosystem help advance childhood cancer research?
The CCDI Data Ecosystem allows doctors and researchers to access and explore data from children and AYAs with childhood cancer treated at many different academic and medical institutions around the country. Connecting and compiling this information from many different sources will give doctors and researchers a more complete understanding of childhood cancers. This could lead to improvements in prevention, treatment, quality of life, and survivorship for children and AYAs with cancer.
How does CCDI connect new and existing data?
The CCDI Data Ecosystem connects new and existing data from different institutions and make them accessible on various platforms in a centralized portal (the CCDI Hub). Data connected through this ecosystem will need to follow certain standards. Standardizing clinical and research data from multiple sources will make it easier and quicker for researchers to find the data they need to answer key scientific questions, which in turn can speed up childhood cancer research progress.
In addition to currently available platforms and tools, the ecosystem will also include data from the CCDI Molecular Characterization Initiative and the CCDI Pediatric, Adolescent, and Young Adult Rare Cancer Study.