Genomic Data Sharing (GDS) Policy

  • Resize font
  • Print
  • Email
  • Facebook
  • Twitter
  • Google+
  • Pinterest

The National Institutes of Health (NIH) aims to make important discoveries that improve health and save lives. Genomic research supports this mission by helping to advance our understanding of factors that influence health and disease. Sharing genomic research data is essential for translating research results into knowledge, products, and procedures that improve human health.

NCI supports and complies with all NIH data sharing policies. The NIH Genomic Data Sharing (GDS) Policy was issued to:

  • promote broad and robust sharing of human and non-human data from a wide range of genomic research
  • ensure appropriate protections for research involving human data and oversight of research conduct, data quality, data management, data sharing, and data use

About the GDS Policy

Find helpful information about the GDS Policy, including when the policy applies, example projects, and providing informed consent.

Data Submission

Information about submitting data under the Genomic Data Sharing (GDS) Policy for intramural, extramural, and non-NIH funded investigators. Includes data sharing best practices, data sharing plans, and institutional certification.

Data Access

Information for NIH staff and extramural investigators on how to get a dbGaP account and how to request controlled-access data.

Contact

Genomic Data Sharing Policy contact information, including NCI-Designated GPAs by division or center.

Most text on the National Cancer Institute website may be reproduced or reused freely. The National Cancer Institute should be credited as the source. Please note that blog posts that are written by individuals from outside the government may be owned by the writer, and graphics may be owned by their creator. In such cases, it is necessary to contact the writer, artist, or publisher to obtain permission for reuse.

We welcome your comments on this post. All comments must follow our comment policy.