Genomic Data Sharing (GDS) Policy
The National Institutes of Health (NIH) aims to make important discoveries that improve health and save lives. Genomic research supports this mission by helping to advance our understanding of factors that influence health and disease. Sharing genomic research data is essential for translating research results into knowledge, products, and procedures that improve human health.
NCI supports and complies with all NIH data sharing policies. The NIH Genomic Data Sharing (GDS) Policy was issued to:
- promote broad and robust sharing of human and non-human data from a wide range of genomic research
- ensure appropriate protections for research involving human data and oversight of research conduct, data quality, data management, data sharing, and data use
Find helpful information about the GDS Policy, including when the policy applies, example projects, and providing informed consent.
Information about submitting data under the Genomic Data Sharing (GDS) Policy for intramural, extramural, and non-NIH funded investigators. Includes data sharing best practices, data sharing plans, and institutional certification.
Information for NIH staff and extramural investigators on how to get a dbGaP account and how to request controlled-access data.