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Instruments for Evaluating Caregiver Burden

Reference Citation(s) Instrument Name Description 
[7]Brief Assessment Scale for Caregivers (BASC) of the Medically Ill14-item rating scale measuring burden and quality of life, plus 8-item subscale measuring negative personal impact
[8,9]Caregiver Quality of Life Index—Cancer (CQOLC) Scale35-item rating scale measuring physical, emotional, family, and social functioning burden
[10]Caregiver Reaction Assessment (CRA)24-item rating scale measuring burden in self-esteem, lack of family support, finances, schedule, and health
[11]Caregiver Strain Index (CSI)13-item rating scale measuring employment, financial, physical, social, and time constraint burden
[12]Zarit Burden Interview (ZBI)22-item rating scale measuring burden in health, psychological well-being, finances, social life, and relationship with patient
[13]CareGiver Oncology Quality of Life questionnaire (CarGOQoL)29-item rating scale measuring psychological well-being, burden, relationship with health care, administration and finances, coping, physical well-being, self-esteem, leisure time, social support, and private life
[14]Care of My Child with Cancer (CMCC)28-item rating scale measuring caregiving tasks for a child completed by family members


  1. Glajchen M, Kornblith A, Homel P, et al.: Development of a brief assessment scale for caregivers of the medically ill. J Pain Symptom Manage 29 (3): 245-54, 2005.  [PUBMED Abstract]

  2. Weitzner MA, Jacobsen PB, Wagner H Jr, et al.: The Caregiver Quality of Life Index-Cancer (CQOLC) scale: development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. Qual Life Res 8 (1-2): 55-63, 1999.  [PUBMED Abstract]

  3. Weitzner MA, McMillan SC: The Caregiver Quality of Life Index-Cancer (CQOLC) Scale: revalidation in a home hospice setting. J Palliat Care 15 (2): 13-20, 1999.  [PUBMED Abstract]

  4. Given CW, Given B, Stommel M, et al.: The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments. Res Nurs Health 15 (4): 271-83, 1992.  [PUBMED Abstract]

  5. Robinson BC: Validation of a Caregiver Strain Index. J Gerontol 38 (3): 344-8, 1983.  [PUBMED Abstract]

  6. Zarit SH, Reever KE, Bach-Peterson J: Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist 20 (6): 649-55, 1980.  [PUBMED Abstract]

  7. Minaya P, Baumstarck K, Berbis J, et al.: The CareGiver Oncology Quality of Life questionnaire (CarGOQoL): development and validation of an instrument to measure the quality of life of the caregivers of patients with cancer. Eur J Cancer 48 (6): 904-11, 2012.  [PUBMED Abstract]

  8. Wells DK, James K, Stewart JL, et al.: The care of my child with cancer: a new instrument to measure caregiving demand in parents of children with cancer. J Pediatr Nurs 17 (3): 201-10, 2002.  [PUBMED Abstract]