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MyPART - My Pediatric and Adult Rare Tumor Network

Rare Tumor News

Recent news about the MyPART program and other advances in the study of rare tumors.


Chordoma Clinic Group, April 2019

First Chordoma Clinic Brings Together Patients, Families, and Expert Doctors

MyPART, the Center for Cancer Research, and the Chordoma Foundation collaborated to host the first childhood, teen, and young adult Chordoma Clinic at NIH from April 16th to 18th, 2019. The clinic aimed to share knowledge and to collect data for research on chordoma affecting young people.

April 19, 2019



Credit: National Cancer Institute

MEK inhibitor selumetinib granted breakthrough designation by FDA to treat neurofibromatosis type 1 in pediatric patients

Selumetinib, a treatment for Neurofibromatosis Type 1, was given a breakthrough designation by the FDA to treat pediatric patients.

CCR News Headlines - April 12, 2019