NCI-CONNECT aims to partner with non-profit organizations who share a common concern for improving the outcomes of patients with rare adult central nervous system (CNS) tumors through awareness and education.
What does it mean to be a NCI-CONNECT partner?
Partners are non-profit groups who work with NCI-CONNECT to identify and engage patients with select rare adult CNS tumors by disseminating information about clinical trials and new approaches to improve care and treatment.
Why partner with NCI-CONNECT?
All primary CNS cancers are rare cancers. They account for less than 2% of all cancers diagnosed a year in the United States. NCI-CONNECT is focusing on 12 types, each with less than 2,000 people diagnosed a year.
The low incident rates of these CNS cancers mean patients and researchers face unique challenges. Patients struggle to find expert care and treatments. The cancer research community struggles to identify a sufficient number of patients to conduct meaningful research.
NCI-CONNECT seeks to address these challenges and unmet needs by connecting patients, providers, and advocates. A collaborative network with a harmonized mission can have a great impact on the progress of clinical care and research for the lives of people with brain and spine tumors and their families.