NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts. To receive new posts via email, subscribe to our NCI-CONNECTions newsletter.
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Donita’s friends and family helped create a recovery plan, cook meals, and care for her after she underwent surgery to remove her pilocytic astrocytoma.
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An interim study analysis demonstrates that combining Fitbit data with self-assessments is a reliable method for understanding sleep changes in patients.
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A phase 1/2 clinical trial is testing an investigational drug called PLX038 on hard-to-treat central nervous system tumors containing extra copies of the MYC and MYCN genes.
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A data analysis shows the value of the @NIHBrainTumor X (formerly Twitter) account as a resource for patients, caregivers, and advocates, as well as neuro-oncology providers and researchers.
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Mikaeel shares how returning to work kept him focused and optimistic throughout treatment for his oligodendroglioma.
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A new study explores how non-medical factors influence the neurocognitive and mood-related symptoms that people with brain tumors experience. These factors include gender or sex, education, where people live, and more.
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The new analyses reveal critical information that will help providers and researchers understand the unique needs of these patients.
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NCI-CONNECT raised awareness for ependymoma and honored patients, care partners, and medical professionals in a butterfly release event at NIH.
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Outcomes Program Manager Alvina Acquaye-Mallory answers questions about how health care providers, patients, and caregivers can cope with stress and burnout during their cancer care journey.
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This May, share information about brain and spine tumors to raise awareness, educate the community, and help people living with these cancers.