NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts.
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Deciding if and When to Have Surgery for a Spine TumorBeth discovered a tumor in the center of her spinal cord and the only treatment is surgery. She shares how she found expert care, support, and resources to prepare her for surgery.
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How Studying the Natural History of Rare Cancers Improves CareResearch Nurse Sonja Crandon shares her work and the goals of the natural history study for people with brain and spine tumors and how it could discover new areas for research while helping patients.
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A Serendipitous Connection Helps Improve Patient Communications and OutreachKristin Odom and Brittany Cordeiro help NCI-CONNECT reach people with rare brain and spine tumors through online education and advocacy partnerships.
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Spinal Cord Tumor Survivor Shares Tips to Prepare and Recover from SurgeryLee was shocked to learn he had a tumor in his spinal cord that required surgery. He shares how he found the right neurosurgeon, prepared and recovered fully from surgery, and now wants to help others.
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Adult Medulloblastoma Workshop ReportNeuro-oncology experts from multiple disciplines met to discuss the scientific progress and challenges of treating medulloblastoma in adults and to find ways to collaborate to advance research and treatments.
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How Epilepsy Surgery Helps People with Brain TumorsNeurosurgeon Dr. Kareem Zaghloul is helping people with brain tumors by performing surgery that can remove their tumors and the cause of seizures.
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Connecting with Others with a Rare Cancer DiagnosisMarcela discovered an ependymoma in her spinal cord. Living internationally, she shares how she found support online and chose to participate in a study to help others.
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Telehealth: What You Need to Know About a Virtual Doctor VisitNeuro-oncology experts share what telehealth is, the benefits and limitations, how to prepare and what to expect during and after your visit.
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Advice from the Brain Tumor CommunityTo help guide you through your brain tumor journey, patients, caregivers, doctors, and advocates share their advice.
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Advances in Brain Tumor Clinical Care and ResearchNCI’s Neuro-Oncology Branch is advancing care and treatment through collaborative scientific workshops, research discoveries, and successful clinical trials.