NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts.
-
An Immunotherapy Drug Trial Expands Across the Nation to Advance ResearchNCI-CONNECT launched an immunotherapy drug trial across its national network of collaborative institutions to reach more people with rare brain and spine tumors.
-
Symposium to Advance Neuro-Oncology Survivorship CareNeuro-oncology providers, researchers, advocates, patients, and care partners gathered virtually to learn and discuss the challenges experienced by persons living with brain and spine tumors and develop survivorship care guidelines.
-
Oral Drug Combination Shows Benefit for Adults with EpendymomaLearn how results from the first prospective clinical trial for adults with ependymoma led to a change in treatment guidelines.
-
Finding Your Best Path and Fighting Brain CancerRobert shares how surviving a rare brain cancer has given him a new perspective and approach to life that includes daily healthy routines and the pursuit of a greater purpose.
-
Clinical Trial Hopes to Reduce Stress and Improve Mood for People Living with Brain TumorsTo improve feelings of distress and anxiety experienced by people with brain tumors, researchers develop a clinical trial using virtual reality to target psychological symptoms.
-
Brain and Spine Tumor Survivors Share How to CopeTo help you manage effects caused by brain or spine tumor, patients share tips so you can cope in a positive way.
-
Providing and Advancing Survivorship Care in Neuro-OncologyNeuro-oncologist Dr. Heather Leeper is involved in every aspect of a patient’s illness experience and shares how she is advancing survivorship care in neuro-oncology.
-
Brain and Spine Tumor Patient and Caregiver Support ResourcesNon-profit patient advocacy organizations help to educate and support individuals with a brain or spine tumor diagnosis.
-
Surviving Life-Altering Effects of a Brain TumorCarol has spent nearly half her life living with her ependymoma diagnosis. She shares the long-term side effects and positive experiences from her cancer journey.
-
Family Support during Spine Tumor DiagnosisAndrea’s two children, husband, and parents have all been affected by her ependymoma diagnosis. She shares how they adjusted and provided support.