NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts. To receive new posts via email, subscribe to our NCI-CONNECTions newsletter.
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Why People with Rare Tumors Should Find a Good Medical TeamJen has lived with an ependymoma for over eight years and undergone multiple treatments, including three brain surgeries. She shares how her determination to go back to work and find a good medical team has helped her live her best life.
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New Research Physician Helps Fight Rare Brain Tumors with KnowledgeDr. Byram Ozer joins NCI-CONNECT to help care for and educate patients, while bringing together medical professionals to learn new skills and treatment approaches.
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Natural History Study for Rare Brain and Spine Tumors Enrolls One Thousand ParticipantsIn the six years since it began, the Natural History Study has amassed an enormous database of information that is helping to improve treatment and quality of life for patients with rare central nervous system cancers.
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Mark Gilbert, M.D., Earns American Brain Tumor Association’s Joel A. Gingras Jr. AwardNCI Neuro-Oncology Branch Chief Mark Gilbert received the American Brain Tumor Association’s Joel A. Gingras Jr. Award for spearheading brain tumor research collaborations and expanding clinical trial access.
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Supportive Services to Help People with Brain and Spine Tumors Live FullyRead how NIH Clinical Center Social Worker Sylvia Stearn provides supportive counseling and resources to help patients with brain and spine tumors cope and transition to their new normal.
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Rare Spine Cancer Survivor: “Ain’t Nothin’ Gonna Steal My Joy!”Lynita has lived with ependymoma for 17 years. She shares how she has endured multiple surgeries, radiation, and drug treatments, including an immunotherapy clinical trial, and has adjusted her life to live fully and joyfully with physical limitations.
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Diagnosing CNS Tumors More Precisely with Methylation MarksMolecular biologist Dr. Zied Abdullaev explains the value of methylation marks for improved accuracy and precision in diagnosing rare brain and spinal cord tumors.
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Progress to Advance Care, Treatments and Patient Outcomes for Brain TumorsRead about our advances in care, treatments and patient outcomes for brain and other central nervous systems tumors in honor of Brain Tumor Awareness Month.
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Neuroradiologist Offers Insight on MRI ScansNeuroradiologist Dr. John Butman has insight and advice on what to expect from brain and spinal cord imaging when you have a cancer diagnosis.
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New Research Shows How Patients with Brain and Spine Tumors are ImpactedFive nurses share data from the Natural History Study, which aims to better understand brain and spine tumors and uncover areas for further research.