NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts.
-
World Summit of Brain Tumour Patient AdvocatesPatient advocates from around the world gathered to share and discuss ways to improve outcomes for people with brain tumors through collaborations, knowledge and hope.
-
Medulloblastoma Survivor Shares 5 Tips to Overcome a Rare DiagnosisKen is an 18-year rare tumor survivor. Although his treatments caused long-term side effects, he shares why he believes he is lucky to be alive and his hopeful advice to others.
-
Coping with Loneliness and Creating New Traditions this Holiday SeasonThe holidays are a time to reflect and connect with your loved ones. During these uncertain times, make plans to create new holiday traditions.
-
Collaborating Globally to Impact Outcomes for Brain and Spine CancersWorld-renowned neuro-oncology researchers and health care providers gathered virtually to share their work, the challenges and possible solutions to improve patient outcomes across central nervous system cancers.
-
Things to Know About Chemotherapy for a Brain TumorGiselle shares her treatment journey with five brain tumors over 23 years and the lifelong impact. She also shares important advice to manage chemotherapy and stay positive.
-
Meet the Specialist who Coordinates Your CarePatient Care Coordinator Kristen Oshin shares how she provides comfort and guidance to people with brain and spine tumors and their caregivers. She guides them through appointments, answers follow-up questions and helps address any care concerns.
-
How Studying the Natural History of Rare Cancers Improves CareResearch Nurse Sonja Crandon shares her work and the goals of the natural history study for people with brain and spine tumors and how it could discover new areas for research while helping patients.
-
Deciding if and When to Have Surgery for a Spine TumorBeth discovered a tumor in the center of her spinal cord and the only treatment is surgery. She shares how she found expert care, support, and resources to prepare her for surgery.
-
A Serendipitous Connection Helps Improve Patient Communications and OutreachKristin Odom and Brittany Cordeiro help NCI-CONNECT reach people with rare brain and spine tumors through online education and advocacy partnerships.
-
Spinal Cord Tumor Survivor Shares Tips to Prepare and Recover from SurgeryLee was shocked to learn he had a tumor in his spinal cord that required surgery. He shares how he found the right neurosurgeon, prepared and recovered fully from surgery, and now wants to help others.