NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts. To receive new posts via email, subscribe to our NCI-CONNECTions newsletter.
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Advancing the Science of Survivorship in Neuro-OncologyDr. Terri Armstrong joined fellow leaders in the field of cancer survivorship to discuss the needs of those living with brain and spine tumors, as well as goals for the future and research funding opportunities.
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NCI Neuro-Oncology Branch Hosts Art Exhibition in Honor of Brain Tumor Awareness MonthBranch members shared poems, paintings, sculptures, and other works of art to display their creativity and build connections within the brain tumor community.
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Facing a Brain Tumor Diagnosis with Strength and ResilienceDalouny has been living with a brain tumor called a glioblastoma since 2018, and tried many treatment approaches before coming to NIH. Today, she continues to defy the odds and live life to the fullest with her family, friends, and a fulfilling career.
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Research Nurse Offers Help, Hope, and a Friendly Voice to People with Rare Brain and Spine TumorsResearch Nurse Tricia Kunst joined the Neuro-Oncology Branch in February 2022 after 21 years in the Thoracic Surgery Branch. She shares what she loves most about her job and the people she gets to meet along the way.
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Why People with Rare Tumors Should Find a Good Medical TeamJen has lived with an ependymoma for over eight years and undergone multiple treatments, including three brain surgeries. She shares how her determination to go back to work and find a good medical team has helped her live her best life.
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New Research Physician Helps Fight Rare Brain Tumors with KnowledgeDr. Byram Ozer joins NCI-CONNECT to help care for and educate patients, while bringing together medical professionals to learn new skills and treatment approaches.
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Natural History Study for Rare Brain and Spine Tumors Enrolls One Thousand ParticipantsIn the six years since it began, the Natural History Study has amassed an enormous database of information that is helping to improve treatment and quality of life for patients with rare central nervous system cancers.
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Mark Gilbert, M.D., Earns American Brain Tumor Association’s Joel A. Gingras Jr. AwardNCI Neuro-Oncology Branch Chief Mark Gilbert received the American Brain Tumor Association’s Joel A. Gingras Jr. Award for spearheading brain tumor research collaborations and expanding clinical trial access.
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Supportive Services to Help People with Brain and Spine Tumors Live FullyRead how NIH Clinical Center Social Worker Sylvia Stearn provides supportive counseling and resources to help patients with brain and spine tumors cope and transition to their new normal.
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Rare Spine Cancer Survivor: “Ain’t Nothin’ Gonna Steal My Joy!”Lynita has lived with ependymoma for 17 years. She shares how she has endured multiple surgeries, radiation, and drug treatments, including an immunotherapy clinical trial, and has adjusted her life to live fully and joyfully with physical limitations.