NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts.
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Oligodendroglioma Workshop ReportNeuro-oncology experts worldwide met to advance their knowledge and collaborate to find better treatments for people with oligodendroglioma.
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Nurse Practitioner Provides Specialized Care and HopeNurse Practitioner Christine Siegel cares for people with brain and spine tumors expertly and affectionately. Learn how she manages their clinical care and symptoms while providing hope.
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How Advances in Radiation Therapy are Improving Care for Brain and Spine TumorsRadiation oncologist Dr. Christina Tsien is a cancer survivor. She discusses the advances in radiation therapy that are improving brain and spine tumor patient outcomes and how her personal experience has impacted the care she provides.
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Q&A: How to Manage Living with Cancer During the HolidaysOur neuro-oncology care providers answered the most common questions they receive during the holidays. Read their advice to help you manage living with a brain and spine tumor so you can enjoy the holiday season.
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Wellness Counselor Helps Patients and Caregivers Connect and CopeAlvina Acquaye helps people with brain and spine tumors and their caregivers cope with life stressors related to their diagnosis. She shares information about the educational and support group she started and the impact of her research.
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Join our Private Facebook Community to Share and ConnectIf you are living with a rare brain or spine tumor, you are not alone. Our private Facebook group, NCI-CONNECT Community, wants to connect you with others with your diagnosis.
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Why a Precise Diagnosis is Vital to Treat Brain and Spine TumorsNCI neuropathologist Dr. Kenneth Aldape is using the latest technologies to precisely diagnose rare brain and spine tumors. He shares his techniques and why they’re important to precision medicine.
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Four-time PNET Survivor Shares Coping TipsDunamis was age four when she had her first surgery to remove a brain tumor. 15 years and four surgeries later, she finally received an accurate diagnosis: PNET. She shares how she positively copes and finds hope.
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How Data Provides Hope to Rare CNS Tumor PatientsLearn how a not-for-profit organization studies the incidence, prevalence, and survival of people with rare brain and other central nervous system tumors to help facilitate research and raise awareness.
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Neurosurgeon Shares Tips to Help Patients Find Specialized CareDr. Edjah Nduom treats and studies rare brain and spine cancers. He shares his knowledge to help patients find specialized care for their tumor type.