NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts.
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Wellness Counselor Helps Patients and Caregivers Connect and CopeAlvina Acquaye helps people with brain and spine tumors and their caregivers cope with life stressors related to their diagnosis. She shares information about the educational and support group she started and the impact of her research.
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Join our Private Facebook Community to Share and ConnectIf you are living with a rare brain or spine tumor, you are not alone. Our private Facebook group, NCI-CONNECT Community, wants to connect you with others with your diagnosis.
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Why a Precise Diagnosis is Vital to Treat Brain and Spine TumorsNCI neuropathologist Dr. Kenneth Aldape is using the latest technologies to precisely diagnose rare brain and spine tumors. He shares his techniques and why they’re important to precision medicine.
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Four-time PNET Survivor Shares Coping TipsDunamis was age four when she had her first surgery to remove a brain tumor. 15 years and four surgeries later, she finally received an accurate diagnosis: PNET. She shares how she positively copes and finds hope.
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How Data Provides Hope to Rare CNS Tumor PatientsLearn how a not-for-profit organization studies the incidence, prevalence, and survival of people with rare brain and other central nervous system tumors to help facilitate research and raise awareness.
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Midline Glioma Cancer Survivor Joins Study to Help OthersJosé shares how he learned about his rare midline glioma cancer in his spine and why he chose to participate in a clinical study to help others.
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Neurosurgeon Shares Tips to Help Patients Find Specialized CareDr. Edjah Nduom treats and studies rare brain and spine cancers. He shares his knowledge to help patients find specialized care for their tumor type.
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Meningioma Survivor Finds Meaning in Rare Cancer DiagnosisDeborah is a two-time cancer survivor. She shares what it is like to live with a type of rare brain cancer called meningioma to help others.
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Genetic Counselor Helps Patients Understand Cancer CareDr. Margarita Raygada helps brain and spine tumor patients understand what genetic testing means for their care and family cancer risk and what it means for research.
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NCI-CONNECT and BTTC 2019 MeetingsRead a summary of the 2019 NCI-CONNECT and BTTC meetings to learn about the latest brain and spine tumor advances and clinical trials.