NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts.
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Surviving Life-Altering Effects of a Brain TumorCarol has spent nearly half her life living with her ependymoma diagnosis. She shares the long-term side effects and positive experiences from her cancer journey.
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New Multi-institutional Study Analyzes Tumor Tissue and Patient Data to Improve CareStudying tumor tissue and clinical data across our national network of institutions will help researchers advance their knowledge of rare brain and spine tumors faster.
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Family Support during Spine Tumor DiagnosisAndrea’s two children, husband, and parents have all been affected by her ependymoma diagnosis. She shares how they adjusted and provided support.
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What to Expect During and After Radiation TreatmentsNick had four surgeries and multiple radiation treatments to treat his ependymoma tumors. He shares what to expect during and after radiation and how cancer changed his outlook on life.
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Reliable Patient-Reported Outcomes Data Informs Treatment DecisionsA team of statisticians and software developers ensure that patient-reported outcomes data are collected and analyzed effectively to inform treatment and research.
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World Summit of Brain Tumour Patient AdvocatesPatient advocates from around the world gathered to share and discuss ways to improve outcomes for people with brain tumors through collaborations, knowledge and hope.
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Medulloblastoma Survivor Shares 5 Tips to Overcome a Rare DiagnosisKen is an 18-year rare tumor survivor. Although his treatments caused long-term side effects, he shares why he believes he is lucky to be alive and his hopeful advice to others.
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Coping with Loneliness and Creating New Traditions this Holiday SeasonThe holidays are a time to reflect and connect with your loved ones. During these uncertain times, make plans to create new holiday traditions.
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Collaborating Globally to Impact Outcomes for Brain and Spine CancersWorld-renowned neuro-oncology researchers and health care providers gathered virtually to share their work, the challenges and possible solutions to improve patient outcomes across central nervous system cancers.
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Things to Know About Chemotherapy for a Brain TumorGiselle shares her treatment journey with five brain tumors over 23 years and the lifelong impact. She also shares important advice to manage chemotherapy and stay positive.