2023 - NCI-CONNECTions
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Former Nurse Accepts a New Reality After a Brain Tumor DiagnosisSteve was a nurse for many years and found meaning in caring for others. But when he was unable to return to work after being diagnosed with an IDH-mutated astrocytoma, he found other ways to lead a fulfilling life.
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Forging an Alliance of Care to Meet the Unmet Needs of Rare Brain and Spine Tumor PatientsProviders in the NCI-CONNECT Clinic collaborate with a patient’s local specialists to offer guidance and opportunities to participate in cutting-edge clinical trials.
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Classifying Brain and Spine Tumors More Precisely to Improve Patient Outcomes and CareNeuropathologist Dr. P.J. Cimino shares how he collaborates with NCI-CONNECT experts to improve diagnosis and care for people with rare brain and spine tumors.
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Navigating a Rare Brain Tumor Diagnosis: A Care Partner’s PerspectiveLiz never imagined that she would become a care partner to her vibrant husband Julio because of an ependymoma diagnosis. She shares their journey and how they work together as a team through the good times and the bad.
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Bringing the Patient, Caregiver, and Advocate Voice to Clinicians and Researchers to Better Understand SurvivorshipAdam Hayden and Kimberly Wallgren visited NCI to share their invaluable perspectives on survivorship and person-centered care in neuro-oncology.
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Advancing the Science of Survivorship in Neuro-OncologyDr. Terri Armstrong joined fellow leaders in the field of cancer survivorship to discuss the needs of those living with brain and spine tumors, as well as goals for the future and research funding opportunities.
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NCI Neuro-Oncology Branch Hosts Art Exhibition in Honor of Brain Tumor Awareness MonthBranch members shared poems, paintings, sculptures, and other works of art to display their creativity and build connections within the brain tumor community.
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Research Nurse Offers Help, Hope, and a Friendly Voice to People with Rare Brain and Spine TumorsResearch Nurse Tricia Kunst joined the Neuro-Oncology Branch in February 2022 after 21 years in the Thoracic Surgery Branch. She shares what she loves most about her job and the people she gets to meet along the way.
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Facing a Brain Tumor Diagnosis with Strength and ResilienceDalouny has been living with a brain tumor called a glioblastoma since 2018, and tried many treatment approaches before coming to NIH. Today, she continues to defy the odds and live life to the fullest with her family, friends, and a fulfilling career.
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Why People with Rare Tumors Should Find a Good Medical TeamJen has lived with an ependymoma for over eight years and undergone multiple treatments, including three brain surgeries. She shares how her determination to go back to work and find a good medical team has helped her live her best life.