Coping - NCI-CONNECTions
Rare brain and spine tumor coping news and commentaries from patients and health and wellness experts. Includes inspiring messages, advice and tips, and positive coping strategies to live fully.
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Navigating a Rare Brain Tumor Diagnosis: A Care Partner’s PerspectiveLiz never imagined that she would become a care partner to her vibrant husband Julio because of an ependymoma diagnosis. She shares their journey and how they work together as a team through the good times and the bad.
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Why People with Rare Tumors Should Find a Good Medical TeamJen has lived with an ependymoma for over eight years and undergone multiple treatments, including three brain surgeries. She shares how her determination to go back to work and find a good medical team has helped her live her best life.
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Supportive Services to Help People with Brain and Spine Tumors Live FullyRead how NIH Clinical Center Social Worker Sylvia Stearn provides supportive counseling and resources to help patients with brain and spine tumors cope and transition to their new normal.
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Rare Spine Cancer Survivor: “Ain’t Nothin’ Gonna Steal My Joy!”Lynita has lived with ependymoma for 17 years. She shares how she has endured multiple surgeries, radiation, and drug treatments, including an immunotherapy clinical trial, and has adjusted her life to live fully and joyfully with physical limitations.
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Near-Death Experiences Guided by FaithTom survived a car crash, two bouts of cancer, and an autoimmune disorder. He shares how faith got him through hard times and changed his outlook.
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Finding Your Best Path and Fighting Brain CancerRobert shares how surviving a rare brain cancer has given him a new perspective and approach to life that includes daily healthy routines and the pursuit of a greater purpose.
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Surviving Life-Altering Effects of a Brain TumorCarol has spent nearly half her life living with her ependymoma diagnosis. She shares the long-term side effects and positive experiences from her cancer journey.
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Coping with Loneliness and Creating New Traditions this Holiday SeasonThe holidays are a time to reflect and connect with your loved ones. During these uncertain times, make plans to create new holiday traditions.
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Connecting with Others with a Rare Cancer DiagnosisMarcela discovered an ependymoma in her spinal cord. Living internationally, she shares how she found support online and chose to participate in a study to help others.
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Advice from the Brain Tumor CommunityTo help guide you through your brain tumor journey, patients, caregivers, doctors, and advocates share their advice.