Be Our Partner
A key component of NCI-CONNECT is to develop partnerships with non-profit organizations whose mission is to advance the understanding and enhance the well-being of adults with selected rare central nervous system (CNS) tumors.
NCI-CONNECT aims to:
- Engage with patients with selected rare CNS tumors.
- Disseminate information about clinical trials to enhance enrollment and information about treatment options.
- Educate patients and providers.
A partner organization should:
- Certify it is a non-profit organization.
- Have goals that relate to education, awareness, or support for patients with rare CNS tumors.
A partner organization will:
- Provide its community information provided by NCI-CONNECT.
- Link to NCI-CONNECT information from its website, newsletter, and social media accounts.
- Share NCI-CONNECT clinical trials, publications, and educational information with its community.
- Effectively communicate with NCI-CONNECT.
- Be a collaborative and collegial member of the NCI-CONNECT partnership network.
- Provide all necessary information, tools, and resources.
- Provide access to its research and clinical experts.
- Invite partners to its educational workshops.
- Provide partners a NCI-CONNECT membership badge.
- Effectively communicate with partners.
- Be a collaborative and collegial partner.
Current NCI-CONNECT Partners
NCI-CONNECT is proud to partner with the following non-profit brain and spine tumor organizations who are committed to raising awareness and educating patients with rare adult CNS tumors.
- American Brain Tumor Association (ABTA)
- Collaborative Ependymoma Research Network (CERN) Foundation
- The EndBrainCancer Initiative (EBCI)
- International Brain Tumour Alliance (IBTA)
- National Brain Tumor Society (NBTS)
- Oligo Nation
Ready to be our partner?
Want more information?
Contact us at NCICONNECT@mail.nih.gov or 240-760-6530.