Patient Decision Aid in Supporting Decision-Making about When to Start or Stop New Drugs, Join Clinical Trials, or Continue Active Surveillance in Patients with Medullary Thyroid Cancer and Their Caregivers

Inclusion Criteria

• Aged 18 years old or older
• Have or will face(d) this decision, including: * Patient/survivor - who has medullary thyroid carcinoma, as determined by a clinician or documented in the Genetics of Endocrine Neoplasia Registry or sporadic (medullary thyroid carcinoma) MTC database; * Caregiver/family member - of patient/survivor who has medullary thyroid carcinoma, as nominated by the patient/survivor; and * Provider - who treats patients/survivors who have medullary thyroid carcinoma, as described above
• Able to speak, read, and write English
• Pregnant patients are included

Exclusion Criteria

• Individuals with cognitive or psychological impairment (e.g., depression, anxiety, severe mental illness; as documented in the registry) (Aims 1, 2 and 3)