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Because of a lapse in government funding, the information on this website may not be up to date, transactions submitted via the website may not be processed, and the agency may not be able to respond to inquiries until appropriations are enacted.

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Updates regarding government operating status and resumption of normal operations can be found at opm.gov.

Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

Trial Status: active

This study collects health information to create a patient registry about desmoplastic small round cell tumor. A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease. The purpose of this study is to create a database, a collection of information, to better understand desmoplastic small round cell tumor. Information from this database may help researcher learn more about desmoplastic small round cell tumor and may be used for current and future research on desmoplastic small round cell tumor.