A Website for Radioactive Iodine Symptom Management to Improve Health-Related Quality of Life in Thyroid Cancer Patients Experiencing Radioactive Iodine Treatment Symptoms
This clinical trial studies whether a website for radioactive iodine (RAI) symptom management, RAI Support, can be used to improve health-related quality of life (HRQOL) in patients with papillary or follicular thyroid cancer who are experiencing symptoms from RAI treatment. Although thyroid cancer has been labeled as the "good cancer" due to its relatively high survival rates, complications from RAI treatment are common and thyroid cancer survivors report significant impact to HRQOL including pain, sleep disturbance, and distress. Patients often do not have enough information and resources for managing RAI symptoms. RAI Support consists of multimedia content (images, videos, text, audio, and infographics across different website pages) that is written at an 8th-grade reading level. RAI Support uses patient materials developed to appeal to patients from different racial and ethnic backgrounds and inclusion of all genders and is accessible on a computer, tablet, or smartphone. RAI Support users can access short (~3 minutes or less) clinician-approved symptom management education videos and follow clinician-led video-guided activities. In addition, RAI Support contains infographic pages about specific symptoms of RAI (e.g., salivary, lacrimal, nasal symptoms with strategies for symptom management) and a resources page consisting of a printable treatment summary and survivorship plan to bring to provider appointments and access to evidence-based stress-management resources such as relaxation recordings. This may be an effective way for thyroid cancer patients to access RAI symptom management material, which may improve HRQOL.