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Coping - NCI-CONNECTions

Rare brain and spine tumor coping news and commentaries from patients and health and wellness experts. Includes inspiring messages, advice and tips, and positive coping strategies to live fully. 

  • Tom sitting with his wife and two children
    • By Tom, Oligodendroglioma Survivor

    Tom survived a car crash, two bouts of cancer, and an autoimmune disorder. He shares how faith got him through hard times and changed his outlook.

  • Bob
    • By Robert, Oligodendroglioma Survivor

    Robert shares how surviving a rare brain cancer has given him a new perspective and changed his approach to life, which now includes daily healthy routines and the pursuit of a greater purpose.

  • Carol lifting weights
    • By Carol, Ependymoma Survivor

    Carol has spent nearly half her life living with her ependymoma diagnosis. She shares her long-term side effects and positive experiences from throughout her cancer journey.

  • Girl with mask holding wrapped present
    • By Alvina Acquaye, NCI-CONNECT Health and Wellness Counselor

    The holidays are a time to reflect and connect with your loved ones. During these uncertain times, make plans to create new holiday traditions.

  • Marcela
    • By Marcela, Ependymoma Survivor

    Marcela discovered an ependymoma in her spinal cord. She shares how she found support online and participated in a study while she was living internationally.

  • Close-up of two people holding hands across a table
    • By Kristin Odom, NCI-CONNECT Communications Editor

    Patients, caregivers, doctors, and advocates share their advice to help guide you through your brain tumor journey.

  • Sarah
    • By Sarah, Ependymoma Survivor

    Sarah was 37 years old when she was diagnosed with an ependymoma. She has been coming to NIH for care for four years. Sarah shares her tips to help others.

    • By Brittany Cordeiro, NCI-CONNECT Program Manager

    Our neuro-oncology care providers answer the most common questions they receive during the holidays. Read their advice to help you manage living with a brain and spine tumor so you can enjoy the holiday season.

    • By Brittany Cordeiro, NCI-CONNECT Program Manager

    Alvina Acquaye helps people with brain and spine tumors and their caregivers cope with life stressors related to their diagnosis. She shares information about the educational and support group she started and the impact of her research.

  • Dunamis
    • By Dunamis, PNET Survivor

    Dunamis was four years old when she had her first surgery to remove a brain tumor. Years later, she finally received an accurate diagnosis.

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