NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts. To receive new posts via email, subscribe to our NCI-CONNECTions newsletter.
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Classifying Brain and Spine Tumors More Precisely to Improve Patient Outcomes and Care
Neuropathologist Dr. P.J. Cimino shares how he collaborates with NCI-CONNECT experts to improve diagnosis and care for people with rare brain and spine tumors.
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Navigating a Rare Brain Tumor Diagnosis: A Care Partner’s Perspective
Liz never imagined that she would become a care partner to her vibrant husband Julio because of an ependymoma diagnosis. She shares their journey and how they work together as a team through the good times and the bad.
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Bringing the Patient, Caregiver, and Advocate Voice to Clinicians and Researchers to Better Understand Survivorship
Adam Hayden and Kimberly Wallgren visited NCI to share their invaluable perspectives on survivorship and person-centered care in neuro-oncology.
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Advancing the Science of Survivorship in Neuro-Oncology
Dr. Terri Armstrong joined fellow leaders in the field of cancer survivorship to discuss the needs of those living with brain and spine tumors, as well as goals for the future and research funding opportunities.
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NCI Neuro-Oncology Branch Hosts Art Exhibition in Honor of Brain Tumor Awareness Month
Branch members shared poems, paintings, sculptures, and other works of art to display their creativity and build connections within the brain tumor community.
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Research Nurse Offers Help, Hope, and a Friendly Voice to People with Rare Brain and Spine Tumors
Research Nurse Tricia Kunst joined the Neuro-Oncology Branch in February 2022 after 21 years in the Thoracic Surgery Branch. She shares what she loves most about her job and the people she gets to meet along the way.
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Facing a Brain Tumor Diagnosis with Strength and Resilience
Glioblastoma survivor Dalouny continues to defy the odds and live life to the fullest with her family, friends, and a fulfilling career.
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Why People with Rare Tumors Should Find a Good Medical Team
Jen has lived with an ependymoma for over eight years and undergone multiple treatments, including three brain surgeries. She shares how her determination to go back to work and find a good medical team has helped her live her best life.
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New Research Physician Helps Fight Rare Brain Tumors with Knowledge
Dr. Byram Ozer joins NCI-CONNECT to help care for and educate patients, while bringing together medical professionals to learn new skills and treatment approaches.
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Natural History Study for Rare Brain and Spine Tumors Enrolls One Thousand Participants
In the six years since it began, the Natural History Study has amassed an enormous database of information that is helping to improve treatment and quality of life for patients with rare central nervous system cancers.