Support - NCI-CONNECTions
News about rare brain and spine tumor support organizations and resources. Includes articles on non-profit groups who connect those impacted and available NCI resources.
-
A data analysis shows the value of the @NIHBrainTumor X (formerly Twitter) account as a resource for patients, caregivers, and advocates, as well as neuro-oncology providers and researchers.
-
NCI-CONNECT raised awareness for ependymoma and honored patients, care partners, and medical professionals in a butterfly release event at NIH.
-
This May, share information about brain and spine tumors to raise awareness, educate the community, and help people living with these cancers.
-
Adam Hayden and Kimberly Wallgren visited NCI to share their invaluable perspectives on survivorship and person-centered care in neuro-oncology.
-
Branch members shared poems, paintings, sculptures, and other works of art to display their creativity and build connections within the brain tumor community.
-
NIH Clinical Center Social Worker Sylvia Stearn provides supportive counseling and resources to help patients with brain and spine tumors cope and transition to their new normal.
-
Dr. Heather Leeper is involved in every aspect of a patient’s illness experience. She shares how she is advancing survivorship care in neuro-oncology.
-
Non-profit patient advocacy organizations help to educate and support individuals with a brain or spine tumor diagnosis.
-
Andrea’s two children, husband, and parents have all been affected by her ependymoma diagnosis. She shares how they adjusted and provided support.
-
Kristin Odom and Brittany Cordeiro help NCI-CONNECT reach people with rare brain and spine tumors through online education and advocacy partnerships.