2021 - NCI-CONNECTions
-
Learn how results from the first prospective clinical trial for adults with ependymoma led to a change in treatment guidelines.
-
Researchers have developed a clinical trial using virtual reality to improve the feelings of distress and anxiety that people with brain tumors experience.
-
Dr. Heather Leeper is involved in every aspect of a patient’s illness experience. She shares how she is advancing survivorship care in neuro-oncology.
-
Patients share tips to help you cope in a positive way and manage the effects of a brain or spine tumor.
-
Non-profit patient advocacy organizations help to educate and support individuals with a brain or spine tumor diagnosis.
-
Carol has spent nearly half her life living with her ependymoma diagnosis. She shares her long-term side effects and positive experiences from throughout her cancer journey.
-
Andrea’s two children, husband, and parents have all been affected by her ependymoma diagnosis. She shares how they adjusted and provided support.
-
Studying tumor tissue and clinical data across our national network of institutions will help researchers advance their knowledge of rare brain and spine tumors faster.
-
A team of statisticians and software developers ensures that patient-reported outcomes data are collected and analyzed effectively to inform treatment and research.
-
Nick had four surgeries and multiple radiation treatments to address his ependymoma tumors. He shares what to expect during and after radiation—and how cancer changed his outlook on life.