NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts. To receive new posts via email, subscribe to our NCI-CONNECTions newsletter.
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Neuro-oncology experts worldwide met to advance their knowledge and collaborate to find better treatments for people with histone mutated midline gliomas.
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Stu shares how the long-term physical impacts after brain surgery, including vision, balance, and speech difficulties, have helped him appreciate the minutia of life and enjoy the world around him.
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Sarah was 37 years old when she was diagnosed with an ependymoma. She has been coming to NIH for care for four years. Sarah shares her tips to help others.
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Kathleen Wall helps people with brain and spine cancers understand and participate in clinical trials, which are designed to find new ways to treat people and improve their quality of life. She shares the information people need to know.
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Global neuro-oncology experts met to advance their knowledge and collaborate to find better treatments for people with oligodendroglioma.
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Nurse Practitioner Christine Siegel cares for people with brain and spine tumors expertly and affectionately. Learn how she manages their clinical care and symptoms while providing hope.
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Radiation oncologist Dr. Christina Tsien is a cancer survivor. She discusses the advances in radiation therapy that are improving brain and spine tumor patient outcomes, and how her personal experience has impacted the care she provides.
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Our neuro-oncology care providers answer the most common questions they receive during the holidays. Read their advice to help you manage living with a brain and spine tumor so you can enjoy the holiday season.
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If you are living with a rare brain or spine tumor, you are not alone. Our private Facebook group, NCI-CONNECT Community, connects you to others with your diagnosis.
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Alvina Acquaye helps people with brain and spine tumors and their caregivers cope with life stressors related to their diagnosis. She shares information about the educational and support group she started and the impact of her research.