Research - NCI-CONNECTions
Rare brain and spine tumor research news and updates from NCI leading experts and collaborators. Includes articles on molecular profiling, genetic testing, and clinical studies and trials to develop better therapies.
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An Immunotherapy Drug Trial Expands Across the Nation to Advance ResearchNCI-CONNECT launched an immunotherapy drug trial across its national network of collaborative institutions to reach more people with rare brain and spine tumors.
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Oral Drug Combination Shows Benefit for Adults with EpendymomaLearn how results from the first prospective clinical trial for adults with ependymoma led to a change in treatment guidelines.
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Clinical Trial Hopes to Reduce Stress and Improve Mood for People Living with Brain TumorsResearchers have developed a clinical trial using virtual reality to improve the feelings of distress and anxiety that people with brain tumors experience.
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New Multi-Institutional Study Analyzes Tumor Tissue and Patient Data to Improve CareStudying tumor tissue and clinical data across our national network of institutions will help researchers advance their knowledge of rare brain and spine tumors faster.
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Reliable Patient-Reported Outcomes Data Informs Treatment DecisionsA team of statisticians and software developers ensures that patient-reported outcomes data are collected and analyzed effectively to inform treatment and research.
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How Studying the Natural History of Rare Cancers Improves CareResearch Nurse Sonja Crandon shares her work, the goals of the Natural History Study, and how it could reveal new areas of research while helping people with brain and spine tumors.
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Advances in Brain Tumor Clinical Care and ResearchNCI’s Neuro-Oncology Branch is advancing care and treatment through collaborative scientific workshops, research discoveries, and successful clinical trials.
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How Data Provides Hope to Rare CNS Tumor PatientsLearn how a not-for-profit organization studies the incidence, prevalence, and survival of people with rare brain and other central nervous system tumors to help facilitate research and raise awareness.
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Neurosurgeon Shares Tips to Help Patients Find Specialized CareDr. Edjah Nduom treats and studies rare brain and spine cancers. He shares his knowledge to help patients find specialized care for their tumor type.
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Genetic Counselor Helps Patients Understand Cancer CareDr. Margarita Raygada helps brain and spine tumor patients understand what genetic testing means for their care and family cancer risk—and what it means for research.