Research - NCI-CONNECTions
Rare brain and spine tumor research news and updates from NCI leading experts and collaborators. Includes articles on molecular profiling, genetic testing, and clinical studies and trials to develop better therapies.
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An Immunotherapy Drug Trial Expands Across the Nation to Advance Research
NCI-CONNECT launched an immunotherapy drug trial across its national network of collaborative institutions to reach more people with rare brain and spine tumors.
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Oral Drug Combination Shows Benefit for Adults with Ependymoma
Learn how results from the first prospective clinical trial for adults with ependymoma led to a change in treatment guidelines.
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Clinical Trial Hopes to Reduce Stress and Improve Mood for People Living with Brain Tumors
Researchers have developed a clinical trial using virtual reality to improve the feelings of distress and anxiety that people with brain tumors experience.
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New Multi-Institutional Study Analyzes Tumor Tissue and Patient Data to Improve Care
Studying tumor tissue and clinical data across our national network of institutions will help researchers advance their knowledge of rare brain and spine tumors faster.
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Reliable Patient-Reported Outcomes Data Informs Treatment Decisions
A team of statisticians and software developers ensures that patient-reported outcomes data are collected and analyzed effectively to inform treatment and research.
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How Studying the Natural History of Rare Cancers Improves Care
Research Nurse Sonja Crandon shares her work, the goals of the Natural History Study, and how it could reveal new areas of research while helping people with brain and spine tumors.
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Advances in Brain Tumor Clinical Care and Research
NCI’s Neuro-Oncology Branch is advancing care and treatment through collaborative scientific workshops, research discoveries, and successful clinical trials.
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How Data Provides Hope to Rare CNS Tumor Patients
Learn how a not-for-profit organization studies the incidence, prevalence, and survival of people with rare brain and other central nervous system tumors to help facilitate research and raise awareness.
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Neurosurgeon Shares Tips to Help Patients Find Specialized Care
Dr. Edjah Nduom treats and studies rare brain and spine cancers. He shares his knowledge to help patients find specialized care for their tumor type.
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Genetic Counselor Helps Patients Understand Cancer Care
Dr. Margarita Raygada helps brain and spine tumor patients understand what genetic testing means for their care and family cancer risk—and what it means for research.