NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts. To receive new posts via email, subscribe to our NCI-CONNECTions newsletter.
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Studying tumor tissue and clinical data across our national network of institutions will help researchers advance their knowledge of rare brain and spine tumors faster.
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A team of statisticians and software developers ensures that patient-reported outcomes data are collected and analyzed effectively to inform treatment and research.
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Nick had four surgeries and multiple radiation treatments to address his ependymoma tumors. He shares what to expect during and after radiation—and how cancer changed his outlook on life.
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Patient advocates from around the world gathered to share and discuss ways to improve outcomes for people with brain tumors through collaborations, knowledge, and hope.
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Ken is an 18-year survivor of a rare tumor. Although his treatments caused long-term side effects, he shares why he believes he is lucky to be alive.
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World-renowned neuro-oncology researchers and health care providers gathered virtually to share their work, challenges, and possible solutions to improve patient outcomes across central nervous system cancers.
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The holidays are a time to reflect and connect with your loved ones. During these uncertain times, make plans to create new holiday traditions.
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Patient Care Coordinator Kristen Oshin shares how she provides comfort and guidance to people with brain and spine tumors and their caregivers. She guides them through appointments, answers follow-up questions, and helps address any care concerns.
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Giselle shares her treatment journey with five brain tumors over 23 years. She gives important advice for managing chemotherapy and staying positive.
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Research Nurse Sonja Crandon shares her work, the goals of the Natural History Study, and how it could reveal new areas of research while helping people with brain and spine tumors.