NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts. To receive new posts via email, subscribe to our NCI-CONNECTions newsletter.
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Brain and Spine Tumor Patient and Caregiver Support Resources
Non-profit patient advocacy organizations help to educate and support individuals with a brain or spine tumor diagnosis.
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Surviving Life-Altering Effects of a Brain Tumor
Carol has spent nearly half her life living with her ependymoma diagnosis. She shares her long-term side effects and positive experiences from throughout her cancer journey.
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Family Support during Spine Tumor Diagnosis
Andrea’s two children, husband, and parents have all been affected by her ependymoma diagnosis. She shares how they adjusted and provided support.
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New Multi-Institutional Study Analyzes Tumor Tissue and Patient Data to Improve Care
Studying tumor tissue and clinical data across our national network of institutions will help researchers advance their knowledge of rare brain and spine tumors faster.
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Reliable Patient-Reported Outcomes Data Informs Treatment Decisions
A team of statisticians and software developers ensures that patient-reported outcomes data are collected and analyzed effectively to inform treatment and research.
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What to Expect During and After Radiation Treatments
Nick had four surgeries and multiple radiation treatments to address his ependymoma tumors. He shares what to expect during and after radiation—and how cancer changed his outlook on life.
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Fourth Annual World Summit of Brain Tumour Patient Advocates
Patient advocates from around the world gathered to share and discuss ways to improve outcomes for people with brain tumors through collaborations, knowledge, and hope.
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Medulloblastoma Survivor Shares 5 Tips to Overcome a Rare Diagnosis
Ken is an 18-year survivor of a rare tumor. Although his treatments caused long-term side effects, he shares why he believes he is lucky to be alive.
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Collaborating Globally to Impact Outcomes for Brain and Spine Cancers
World-renowned neuro-oncology researchers and health care providers gathered virtually to share their work, challenges, and possible solutions to improve patient outcomes across central nervous system cancers.
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Coping with Loneliness and Creating New Traditions This Holiday Season
The holidays are a time to reflect and connect with your loved ones. During these uncertain times, make plans to create new holiday traditions.