NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts. To receive new posts via email, subscribe to our NCI-CONNECTions newsletter.
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First-in-Human Trial for People with Recurrent Rare CNS Tumors
NCI-CONNECT launched a phase 1 clinical trial for people with recurrent rare brain and spine tumors as a first step toward developing a novel drug.
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New Immunotherapy Study for Glioblastoma
A clinical trial investigates immune checkpoint inhibitors with standard treatment in people with aggressive brain cancers to understand the immune system response and improve long-term outcomes.
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Working Toward Better Radiation Responses Through Novel, Targeted Drugs
Radiation Oncologist Dr. Kevin Camphausen is helping people with brain and spine tumors by developing drugs that can enhance the impact of radiation treatment.
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An Immunotherapy Drug Trial Expands Across the Nation to Advance Research
NCI-CONNECT launched an immunotherapy drug trial across its national network of collaborative institutions to reach more people with rare brain and spine tumors.
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Symposium to Advance Neuro-Oncology Survivorship Care
Neuro-oncology providers, researchers, advocates, patients, and care partners gathered virtually to learn and discuss the challenges experienced by people living with brain and spine tumors and develop survivorship care guidelines.
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Finding Your Best Path and Fighting Brain Cancer
Robert shares how surviving a rare brain cancer has given him a new perspective and changed his approach to life, which now includes daily healthy routines and the pursuit of a greater purpose.
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Oral Drug Combination Shows Benefit for Adults with Ependymoma
Learn how results from the first prospective clinical trial for adults with ependymoma led to a change in treatment guidelines.
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Clinical Trial Hopes to Reduce Stress and Improve Mood for People Living with Brain Tumors
Researchers have developed a clinical trial using virtual reality to improve the feelings of distress and anxiety that people with brain tumors experience.
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Providing and Advancing Survivorship Care in Neuro-Oncology
Dr. Heather Leeper is involved in every aspect of a patient’s illness experience. She shares how she is advancing survivorship care in neuro-oncology.
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Brain and Spine Tumor Survivors Share How to Cope
Patients share tips to help you cope in a positive way and manage the effects of a brain or spine tumor.