Support - NCI-CONNECTions
News about rare brain and spine tumor support organizations and resources. Includes articles on non-profit groups who connect those impacted and available NCI resources.
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If you are living with a rare brain or spine tumor, you are not alone. Our private Facebook group, NCI-CONNECT Community, connects you to others with your diagnosis.
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Use our guide with resources and information to share with your community about brain tumors in May. By raising awareness, we can help those living with a brain tumor.
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Read how a national advocacy organization has helped unify and mobilize a community to advance care and knowledge for brain tumor patients and their families.
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Kimberly Wallgren shares how her father’s cancer inspired a non-profit to educate and connect people living with ependymoma.
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Read how the first national advocacy organization for brain tumor education and information is expanding its services and collaborating to improve care and treatment.
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Read how a father is advocating to save his two sons with oligodendrogliomas, and how his family copes.
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A brain tumor caregiver shares how her journey supporting her son led her to create a worldwide community for brain tumor patient organizations and others in the field of neuro-oncology.