NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts. To receive new posts via email, subscribe to our NCI-CONNECTions newsletter.
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Coping with Loneliness and Creating New Traditions This Holiday Season
The holidays are a time to reflect and connect with your loved ones. During these uncertain times, make plans to create new holiday traditions.
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Meet the Specialist Who Coordinates Your Care
Patient Care Coordinator Kristen Oshin shares how she provides comfort and guidance to people with brain and spine tumors and their caregivers. She guides them through appointments, answers follow-up questions, and helps address any care concerns.
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Things to Know About Chemotherapy for a Brain Tumor
Giselle shares her treatment journey with five brain tumors over 23 years. She gives important advice for managing chemotherapy and staying positive.
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How Studying the Natural History of Rare Cancers Improves Care
Research Nurse Sonja Crandon shares her work, the goals of the Natural History Study, and how it could reveal new areas of research while helping people with brain and spine tumors.
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Deciding If and When to Have Surgery for a Spine Tumor
Beth discovered a tumor in the center of her spinal cord and the only treatment was surgery. She shares how she found expert care, support, and resources to help her make a decision.
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A Serendipitous Connection Helps Improve Patient Communications and Outreach
Kristin Odom and Brittany Cordeiro help NCI-CONNECT reach people with rare brain and spine tumors through online education and advocacy partnerships.
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2019 Adult Medulloblastoma Workshop
Neuro-oncology experts from multiple disciplines met to discuss the scientific progress and challenges of treating medulloblastoma in adults—and to find ways to collaborate to advance research and treatments.
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Spinal Cord Tumor Survivor Shares Tips to Prepare and Recover from Surgery
Lee was shocked to learn he had a tumor in his spinal cord that required surgery. He shares how he found the right neurosurgeon, prepared for surgery, and recovered fully.
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How Epilepsy Surgery Helps People with Brain Tumors
Neurosurgeon Dr. Kareem Zaghloul is helping people with brain tumors by performing surgery that removes their tumor and the cause of their seizures.
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Connecting to Others with a Rare Cancer Diagnosis
Marcela discovered an ependymoma in her spinal cord. She shares how she found support online and participated in a study while she was living internationally.