NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts. To receive new posts via email, subscribe to our NCI-CONNECTions newsletter.
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Our neuro-oncology providers share answers to important questions about brain tumor care, treatment, impact, and innovative research.
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Read how Dr. Brett Theeler is helping treat and educate patients with PXA and APXA tumors, which are among the rarest of rare brain and spine cancers.
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Read how a national advocacy organization has helped unify and mobilize a community to advance care and knowledge for brain tumor patients and their families.
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Darien shares how he lived with what he thought was an aggressive brain cancer for eight years. Then, he got an accurate low-grade rare tumor diagnosis and made a fresh start.
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Neuro-oncology experts worldwide met to advance their knowledge and collaborate to find better treatments for people with ependymoma.
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Kimberly Wallgren shares how her father’s cancer inspired a non-profit to educate and connect people living with ependymoma.
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Dr. Terri Armstrong shares why she chose to study rare brain and spine tumors and how her research is advancing patient quality of life.
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Being a caregiver to a patient with a brain or spine tumor is an important and challenging role, but caregivers need to focus on their health and wellness too.
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Read how collaborating across specialties can help neuro-oncologists better understand pineal region tumors.
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Read how the first national advocacy organization for brain tumor education and information is expanding its services and collaborating to improve care and treatment.