Find support and connect with others impacted by a brain or spinal cord tumor by using the following resources.
The mission of the American Brain Tumor Association (ABTA) is to advance the understanding and treatment of brain tumors with the goals of improving, extending and, ultimately, saving the lives of those impacted by a brain tumor diagnosis. They do this through interactions and engagements with brain tumor patients and their families, collaborations with allied groups and organizations, and the funding of brain tumor research.
A program built for patients and caregivers. It is an online navigator to help them understand, manage, and cope with all the twists and turns of a brain tumor diagnosis. It includes timely articles from the scientific and personal perspective, more than 200 videos of physicians, caregivers, and patients sharing their stories and resources developed to ease some of the journey through treatment. Brains for the Cure connects the brain tumor community to let those fighting know they are not alone.
The Brain Tumor Network (BTN) is a navigation resource for adult patients and caregivers in the United States seeking information about brain tumor treatment options including clinical trials. This unbiased resource is provided at no cost to patients, caregivers, or healthcare professionals.
The CERN Foundation is committed to improving the care and outcome of people with ependymoma through community support and research efforts. The CERN website is dedicated to informing patients and caregivers about treatment, diagnosis, clinical trials, symptom management, and recurrence. It is a valuable resource for those affected by ependymoma, including patient stories.
The EndBrainCancer Initiative is enhancing patient outcomes by expanding FDA-approved treatment modalities and fueling research in the pharma/bio/life sciences, device and diagnostic industries and by closing the existing gap from initial diagnosis to immediate and expanded access to specialists, researchers, advanced and innovative treatments, clinical trials and critical care with the ultimate goal of improving patient outcomes through updating and improving WHO and NCCN Guidelines and clinical practices related to standard of care for brain cancer patients.
The International Brain Tumour Alliance (IBTA) brings together experience and expertise from all over the world with the aim of enhancing the well-being and quality of life of brain tumor patients and their families.
The National Brain Tumor Society (NBTS) brings together the best in brain tumor research and supportive patient services. They offer hope to patients, families, and caregivers during every stage of the treatment journey. NBTS invests wisely and strategically in innovative research that will lead to advances and ultimately a cure for people living with a brain tumor.
Oligo Nation is driven by the urgent need for new treatments. There hasn’t been a new treatment approved for Oligo in 20 years. Oligo Nation works with and support families that want to overcome this disease and raises money for medical research.
NCI-CONNECT is not responsible for the content on these sites.