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Input Needed for Pediatric Data Standards

Looking to advance the understanding and treatment of pediatric cancers? Email us your feedback on the Pediatric Cancer Core Common Data Elements (CDEs) draft list. This resource will help you to collect, store, and share pediatric data.

Review the draft list and let us know what you think about the following:

  • Tier status for each element (should they be mandatory, conditional, or optional?)
  • Additions (are there new elements we should add?)
  • Deletions (are there elements we should remove?)

NCI’s Childhood Cancer Data Initiative (CCDI) developed this list to integrate and harmonize clinical, research, and registry data on children, adolescents, and young adults. 

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