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Cancer Community Partnership

About Us

The National Cancer Institute (NCI) Cancer Community Partnership was created by the NCI Center for Cancer Training in 2020 with the goal of connecting the scientific and medical community with individuals personally affected by cancer. The Cancer Community Partnership is a collaboration between individuals affected by cancer, patient advocates, researchers, and health care providers. We hope that, together, we will be able to learn from one another through inclusive conversations and to influence the development of cancer science and cancer care by integrating the patient experience at all levels.

Our Mission 

We are a learning community with three primary goals:

1. For early career scientists to learn about the patients' perspectives and develop skills around communicating with a lay audience 

2. For individuals affected by cancer to have an opportunity to share their experiences; and for research advocates to share the collective patient perspective and help advance science

3. To bring together people from across the cancer continuum to learn from one another 

Our primary activities will be interactive events covering crowd-sourced topics, including presentations by cancer researchers and trainees, discussions, and panels between researchers, patients, and healthcare providers. Members of the community are welcome to attend any of our events which will be offered at a variety of times throughout the year to allow for flexibility in scheduling. We are looking for advocates established in the cancer community to assist us in forming long-term relationships in the community, train our trainees in effective communication, and help ensure that everyone is supported in the program.

 

Our Team

Advisory

Bob Riter
Patient Advocate, Cornell Community Cancer Partnership

Christine Hodgdon
Patient Advocate, The Storm Riders Network

Everett Dodson
Community Health Educator, (retired, Georgetown/Lombardi Cancer Center)

Laurie Cynkin
Advocacy Relations Manager, Office of Advocacy Relations, NCI

Trainee Steering Committee

Peter DelNero

Princess Ekpo

Jenny Fang

Rochelle Fletcher

Dionna Gamble

Alyxandra Golden

Brittney Harrington

Zoya Khan

Subreen Khatib

Anagha Krishnan

Molly Maher

Yasmine Milan

Heather Platter

Andrew Sinkoe

Mia Spezia

Contact

Email: cancercommunity@nih.gov 

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