Rare Brain and Spine Tumor Stories
Hear advice and tips about care and treatment from patients and caregivers living with a rare central nervous system (CNS) tumor. Reading these stories can help guide and inspire you through your journey.
Inspiring Messages from the Brain Tumor Community
To help motivate you through your journey as a brain tumor survivor or caregiver, others in the brain tumor community share some words of encouragement.
Maintaining Hope: Three Decades Living with Ependymoma
Learn how a patient with an ependymoma in her spine has survived the disease for over 30 years. She shares her treatment experieces and coping tips.
Two Sons with a Rare Brain Cancer? We Choose to Fight through Advocacy
Read how a father is advocating to save his two sons with oligodendrogliomas and how his family copes.
Caregiver Journey Leads to an International Brain Tumor Patient Organization
A brain tumor caregiver shares how her journey supporting her son led to an international brain tumor organization.
Two-time Oligodendroglioma Survivor: Never Give Up Hope
A brain tumor survivor shares his experience with oligodendroglioma and advice for others.
Medulloblastoma Survivor Finds Hope in Clinical Trials
A mother shares her family’s 11-year quest to find the best treatments for their daughter’s medulloblastoma tumors.
Pineal Region Tumor Survivor Lives Fully with Inoperable Tumor
A pineal region tumor survivor shares how he found the best care, treatments and resources to live.
PXA Tumor Survivor Starts Life Over After Learning He Was Misdiagnosed
Darien shares how he lived with what he thought was an aggressive brain cancer for eight years. Then, he got an accurate low-grade rare tumor diagnosis and made a fresh start.