Rare Brain and Spine Tumor Stories
Hear advice and tips about care and treatment from patients and caregivers living with a rare central nervous system (CNS) tumor. Reading these stories can help guide and inspire you through your journey.
Maintaining Hope: Three Decades Living with Ependymoma
Learn how a patient with an ependymoma in her spine has survived the disease for over 30 years. She shares her treatment experieces and coping tips.
Two Sons with a Rare Brain Cancer? We Choose to Fight through Advocacy
Read how a father is advocating to save his two sons with oligodendrogliomas and how his family copes.
Caregiver Journey Leads to an International Brain Tumor Patient Organization
A brain tumor caregiver shares how her journey supporting her son led to an international brain tumor organization.
Two-time Oligodendroglioma Survivor: Never Give Up Hope
A brain tumor survivor shares his experience with oligodendroglioma and advice for others.
Medulloblastoma Survivor Finds Hope in Clinical Trials
A mother shares her family’s 11-year quest to find the best treatments for their daughter’s medulloblastoma tumors.
Pineal Region Tumor Survivor Lives Fully with Inoperable Tumor
A pineal region tumor survivor shares how he found the best care, treatments and resources to live.