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NCI-CONNECT Rare Brain & Spine Tumor Network
 

Symptom Management App

Book with a brain in the middle
Credit: NCI-CONNECT

The My STORITM app was developed for brain tumor patients and caregivers. Learn about how this free mobile app can help you track and manage your symptoms and self-care activities.

People living with a brain tumor can experience a variety of symptoms caused by the tumor or treatments. These symptoms can affect their life in many ways, including how they feel, if they can work, and how they tolerate treatments.

Our research has shown that people living with a brain or spine tumor have many symptoms. The most common symptoms people with a brain tumor experience are fatigue, sleep disturbance, mood disturbance, seizure, headache, body pain, cognitive symptoms, constipation, nausea, vomiting, diarrhea, weakness, and difficulty walking. “We work together with our patients to reduce symptoms that may impact not only their quality of their life, but also survival,” shares Terri Armstrong, Ph.D., senior investigator and deputy chief at the NCI’s Center for Cancer Research, Neuro-Oncology Branch (NOB).

“Managing symptoms is an integral part of patient care, but tools to help track symptoms and self-management for this population are lacking,” shares Orieta Celiku, Ph.D., application project manager and staff scientist at the NOB.

To manage these side effects, the NOB developed the My STORITM* mobile app to help people with a brain tumor and their loved one’s track, organize, and manage symptoms and self-care activities. In collaboration with Mahendar Ramidi, application developer at the NOB, brain tumor patients and their caregivers can capture their unique experiences using the My STORITMapp.

What is Included in the My STORITM App?

In the app, you will be able to:

  • Track your symptoms and their severity daily.
  • Track the impact your symptoms have on physical functions, as well as role and social activities.
  • Find self-care information on how to recognize, manage, and report your symptoms.
  • Learn self-care strategies to improve your symptoms.
  • Track your self-care activities, such as diet, exercise, sleep, and medications.
  • Track your treatments and clinical appointments.
  • View how these symptoms change over time and how they are impacted by appointments, treatments, and self-care activities.
  • Generate a report of your tracked activities.
  • Share reports with your health care team or family, or save them to your health care record.

“When developing this app, we wanted to make sure that caregivers can also use the app and help their loved ones track their symptoms and manage their health condition,” shares Mahendar Ramidi.

My STORI App Video

The My STORITM app provides general guidelines. Specific reporting and care instructions should come from your health care team. The app will only collect information that you manually enter and data will only be stored on your phone. You can decide what information you want to share and who you want to share it with.

"By having easy access to information on self-care strategies with a symptom tracker, our hope is to improve your care and communication with your health care team," shares Kristin Odom, app designer and communications editor at the NOB.

We hope using the app can help you recognize patterns in your symptoms and self-care activities so that you can do things that matter most to you.

Download the My STORITM app >

The app is currently available for Apple phones, and we have plans to develop for Android devices in the future. If you do not have access to an Apple mobile device, view the symptom management section of our website to learn how you or your caregiver can recognize, manage and report your symptoms.

Need help navigating the app? View our instructional video on how to use the app. Still have questions? Email us at mystori@nih.gov.

For details about privacy policy and terms of use, please review My STORITM Privacy Policy and Terms of Use.

My STORI App Instruction Video

*My STORI is a trademark of the U.S. Department of Health and Human Services.

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