NCI-CONNECT Rare Brain & Spine Tumor Network
 

Join us! Brain Tumor Awareness Month Guide and Information

April 23, 2019, by NCI-CONNECT Staff

Use our guide with resources and information to share with your community about brain tumors in May. By raising awareness, we can help those living with a brain tumor.

In May, for Brain Tumor Awareness Month (BTAM), let’s bring the brain tumor community together to raise awareness and educate people living with a brain tumor. Our voices together can improve care.

Primary central nervous system (CNS) tumors begin in the brain or spinal cord. About 24,000 people are diagnosed a year with a primary CNS cancer. All primary CNS cancers are rare, so often disease information, support, and expert care is hard to find.

You are encouraged to get involved by sharing information about brain tumors with others beginning in May and continue after BTAM. By raising awareness, our hope is to recognize the need for clinical studies to improve early diagnosis, standardize treatment, and improve the health of those living with this disease.

About Brain Tumors

Watch and share this NCI video: Brain and Other Central Nervous System Cancers | Did You Know?

#BrainTumorTips 

To bring together the brain tumor community and help encourage those living with a brain tumor, we created brain tumor tips to share with our followers and are asking them to share their tips as well. We encourage you to do the same.

Some topic ideas for brain tumor tips include: coping with a brain tumor (feelings, adjusting, day-to-day life, self-image and sexuality, support for caregivers, survivorship, managing care); brain tumor treatments (types, trials, drugs, research); and understanding diagnosis (tumor types, symptoms). Brain tumor tips can be as videos, graphics, or any sharable message format for the community. Messages can be from a provider, researcher, patient, caregiver, advocate, or anyone affected by a brain tumor.

When you share your tips please include the #braintumortips hashtag! View our brain tumor tips >

View inspiring messages from the brain tumor community >

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Q&A: Understanding Brain Tumor Treatment, Impact, and Research

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Inspiring Messages from the Brain Tumor Community

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