Childhood Cancer Data Research in the Community
Across the childhood cancer community, there are people contributing to changing how childhood cancer data is shared, for the benefit of anyone experiencing these cancers. Read their stories.
Data Research in the Community
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Matt EhrhardtMatt hopes that shared data will improve long-term follow-up care for survivors of childhood and AYA cancer.
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Fernanda MichelsMotivated by the possibility of helping young people with cancer, Fernanda is working to improve how childhood cancer data is tracked and shared.
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Ethel NgenEthel’s imaging data could help doctors find and treat brain injuries from radiation therapy in childhood cancer survivors.
Data Research in the Community
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Smita BhatiaSmita hopes that increased data sharing and access will lead to discoveries that can be applied to patient care.
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Michael OrtizAccess to data connected by CCDI could help Michael and others learn about rare childhood cancers faster than ever before.
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Corinne LinardicData from CCDI could help Corinne and her team learn more about soft tissue sarcomas and find new targets for treatment.
Data Research in the Community
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Xiao-Nan LiResearchers working with Xiao-Nan's mouse models and data accessible through CCDI may be able to speed up development of childhood brain tumor treatments.
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Mignon Lee-Cheun LohFor Mignon, CCDI presents opportunities to sequence patients’ leukemias and contribute data that could impact patient care.
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Nilsa RamirezLooking at clinical and lab data together can generate more information and lead to greater discoveries, says Nilsa.
Data Research in the Community
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Sanford and Elana SimonFather and daughter Sanford and Elana help collect and organize data about the childhood cancer that Elana was diagnosed with at 12.
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Paula AristizabalPaula believes collecting and sharing data about social determinants of health can improve childhood cancer clinical trials and address health disparities.
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Lynne WagnerImproving how data is captured from adolescents and young adults is a priority for Lynne, who wants to use patient-reported outcomes to help personalize treatments.
