Childhood Cancer Data Initiative (CCDI)
NCI’s Childhood Cancer Data Initiative (CCDI) is building a community centered around childhood cancer care and research data. Through better data sharing, we can advance our understanding of cancer biology and improve childhood cancer diagnosis, treatment, quality of life, and survivorship.
CCDI Goals
CCDI has three foundational goals:
- gather data from every child, adolescent, and young adult (AYA) diagnosed with a childhood cancer, regardless of where they receive their care
- create a national strategy of appropriate clinical and molecular characterization to speed diagnosis and inform treatment for all types of childhood cancers
- develop a platform and tools to bring together clinical care and research data that will improve preventive measures, treatment, quality of life, and survivorship for childhood cancers
CCDI Programs
Events and Webinars
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2025 CCDI Symposium: Collaborate. Innovate. Transform.
Join us in person in Bethesda, Maryland, or online for the CCDI Symposium on October 6 and 7, 2025. This event, hosted by the National Cancer Institute, brings together the childhood cancer community. Register today!
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Unlock the Power of Unstructured Data with EMERSE
Missed our last webinar on EMERSE, a text processing system designed specifically for non-technical users? Check out the recording and presentation.
Community Stories
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KamalaniKamalani’s hope that childhood cancer treatments continue to improve could be possible through better data sharing.
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CharlieThrough the power of data sharing, Charlie was able to benefit from clinical trials that played a critical role in his treatment and recovery.
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JaceProcessing his experience as a young adult with cancer changed Jace’s perspective on life.