Childhood Cancer Patient and Family Experiences
The experiences of childhood cancer survivors, patients, and their families remind us why improving childhood cancer data sharing is important. Read their stories.
Patient and Family Experiences
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JaceProcessing his experience as a young adult with cancer changed Jace’s perspective on life.
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KamalaniKamalani’s hope that childhood cancer treatments continue to improve could be possible through better data sharing.
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CharlieThrough the power of data sharing, Charlie was able to benefit from clinical trials that played a critical role in his treatment and recovery.
Patient and Family Experiences
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OliviaTreatment experiences like Olivia’s could help inform treatment plans for other children with cancer.
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CameronShared data on childhood cancers can lead to more targeted therapies, like those that helped Cameron beat brain cancer.
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JuanitaJuanita shares her experiences with late effects of treatment and why data sharing is important for survivors like her.
Patient and Family Experiences
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SophieBetter data sharing could not only make it easier for doctors to research cancers like Sophie’s but also ease stress for caregivers.
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CallanDiagnosed with synovial sarcoma, Callan and his family persevered until they got the lifesaving care he needed.
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JoeJoe seeks to honor his daughter and improve outcomes for children with acute myeloid leukemia by applying artificial intelligence to data.
Patient and Family Experiences
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AbbyShared data from Abby’s experiences with Philadelphia chromosome–positive ALL could help other children diagnosed with this rare form of leukemia.
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SarahChildhood cancer survivor Sarah wants researchers to remember the human side of data.
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LaurenLauren, a medical student and childhood cancer survivor, believes data sharing can lead to targeted cancer treatments with fewer long-term effects.
Patient and Family Experiences
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GraceWanting to be a voice for others, childhood cancer survivor Grace is bringing attention to the fight against childhood brain cancer.
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LisaImproving how childhood cancer data is shared could help medical professionals provide the best care for children with cancer as well as survivors, just as they did for Lisa.
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FaithanneClinical trial participation is helping Faithanne now but could also provide data to help others in the future.
