Research Advocacy at NCI

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Research advocates play a vital role in shaping NCI’s work. They challenge us, and ensure that we never lose sight of what we are here to do – which is to improve patient outcomes by advancing cancer research. We can’t do this without the unique perspectives research advocates bring.

Dr. Doug Lowy, NCI Deputy Director

The advocacy community provides NCI with critical perspective and insights that are essential to advancing cancer research. Prioritizing and integrating the collective patient perspective across NCI-supported research activities helps to ensure scientific and medical advances are more timely, relevant, and effective for people living with and affected by cancer.

NCI’s Office of Advocacy Relations (OAR) works with all research advocates and organizations to ensure the community’s unique perspectives and ideas are integrated into NCI activities.

Advocate Roles at NCI

Both individual research advocates and national organizations play unique and critical roles that can broadly be categorized across four key functions.

Research Advocate Roles Infographic

Advise

Advocates develop recommendations and provide input on strategic directions or broad policy issues. Activities may include:

Design

Advocates assist in developing or enhancing programs and activities. Their contributions often help identify barriers to implementation. Activities may include:

  • Participating in working groups or steering committees
  • Supporting clinical trial development and accrual

Review

Advocates evaluate and analyze research proposals and communications. Activities may include:

  • Participating in peer review panels
  • Editing or translating scientific language to improve readability

Disseminate

Advocates share and amplify research findings and scientific information for their constituencies. Activities may include:

To find out how you or your group can get involved, email NCIODOAR@nih.gov to connect with OAR today!

  • Updated: October 20, 2017