Finished with Rare Brain or Spine Tumor Treatment
When you have completed cancer treatment, ask your doctor for a summary of your care and a follow-up care plan. Your doctor may refer to this plan as your survivorship care plan.
Survivorship Care Plan
Your survivorship care plan should include how often you have follow-up visits and diagnostic tests. At these visits, your healthcare team will examine you, ask you questions about your health, and take a MRI or CT scan. Your health care team is watching for any changes for signs that your tumor has come back. They will also help you manage any treatment side effects.
A rare brain or spine tumor can continue to impact your life even after your treatment ends. You may be adjusting to a new normal or living with physical and cognitive changes. You may also constantly fear your tumor will return. Living with worries and anxieties can be challenging for you and your loved ones. We understand and have developed the following resources to help you transition to a new normal.
Medulloblastoma Survivor’s Journey
