Childhood Cancer Data Initiative (CCDI)
NCI’s Childhood Cancer Data Initiative (CCDI) is building a community centered around childhood cancer care and research data. Through better data sharing, we can advance our understanding of cancer biology and improve childhood cancer diagnosis, treatment, quality of life, and survivorship.
CCDI Goals
CCDI has three foundational goals:
- gather data from every child, adolescent, and young adult (AYA) diagnosed with a childhood cancer, regardless of where they receive their care
- create a national strategy of appropriate clinical and molecular characterization to speed diagnosis and inform treatment for all types of childhood cancers
- develop a platform and tools to bring together clinical care and research data that will improve preventive measures, treatment, quality of life, and survivorship for childhood cancers
CCDI Programs
Events and Webinars
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Office Hours: Childhood, Adolescent, and Young Adult Cancer Innovation Challenge
Join us on November 9 from 1:30–2:00 p.m. ET for a final office answering any remaining questions about the new prize competition: the Childhood, Adolescent and Young Adult Cancer Data Innovation Challenge ($17,000,000 total prize). Milestone 1 submission
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Precision Medicine in Neuroblastoma: Genomics and Immunophenotyping
Join us webinar on November 9 from 2:00–3:00 p.m. ET and learn about NCI-supported research to advance understanding and treatment of high-risk neuroblastoma through the New Approaches to Neuroblastoma Therapy (NANT) consortium. Presenters will discuss it
Community Stories
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Childhood Cancer Patient and Family ExperiencesLearn about the need for improved data sharing through personal stories.
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Childhood Cancer Data in the CommunityLearn about people working across the community on childhood cancer data.
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Childhood Cancer Data Sharing at NCILearn how NCI staff are working to improve childhood cancer data sharing.