Childhood Cancer Data Initiative (CCDI)
NCI’s Childhood Cancer Data Initiative (CCDI) is building a community centered around childhood cancer care and research data. Through better data sharing, we can advance our understanding of cancer biology and improve childhood cancer diagnosis, treatment, quality of life, and survivorship.
CCDI Goals
CCDI has three foundational goals:
- gather data from every child, adolescent, and young adult (AYA) diagnosed with a childhood cancer, regardless of where they receive their care
- create a national strategy of appropriate clinical and molecular characterization to speed diagnosis and inform treatment for all types of childhood cancers
- develop a platform and tools to bring together clinical care and research data that will improve preventive measures, treatment, quality of life, and survivorship for childhood cancers
CCDI Programs
Events and Webinars
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CCDI Virtual Symposium Series
The series features experts in childhood cancer research, data science, clinical care, and advocacy sharing insights and real-world strategies to improve outcomes for children with cancer. Register for the webinars in March and April!
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Webinar: Kids Aren’t Small Adults - Building Intentional AI for Pediatric Brain Tumors
Join us on March 10, 2026, from 1:00–2:00 p.m. ET, and hear from Dr. Pallavi Tiwari at the University of Wisconsin-Madison on how AI and computational imaging can inform better, more personalized treatments for kids with brain cancer.
Community Stories
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Childhood Cancer Patient and Family ExperiencesLearn about the need for improved data sharing through personal stories.
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Childhood Cancer Data in the CommunityLearn about people working across the community on childhood cancer data.
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Childhood Cancer Data Sharing at NCILearn how NCI staff are working to improve childhood cancer data sharing.